Mara Pieri (9A12-82DA-3230)

Curriculum Vitae

Mara Pieri

Researcher at CES - Center for Social Studies (University of Coimbra). She holds a BA and MA in Sociology at University of Trento (Italy). She holds a PhD in "Human Rights in Contemporary Societies" at CES, with a thesis on the experiences of LGBTQ+ adults with chronic illness in Italy and Portugal. In 2023 she published "LGBTQ+ People with Chronic Illness: Chroniqueers in Southern Europe" (Palgrave MacMillan). Her PhD research won the "Controtempo" Prize, awarded to early-career researchers by Codici Ricerca e Intervento (Milan) to develop the multimedia project "Chroniqueers" (www.chroniqueers.it); it also won the Special Mention for the Prize "Virgínia Quaresma" in Cultural Studies (Univ. Aveiro). She has deep expertise as a consultant in inclusive and accessible communication, and communication of science. Since 2018 she coordinates the Research Stream on Sexuality and Gender of the APS - Portuguese Sociological Association. She co-organises the series of seminars "Sharp Talks - Health, Sexuality and Human Rights" at CES and she integrates the thematic line "Democracy, justice and human rights". She is a member of the research team in the project "REMEMBER - Vivências de Pessoas LGBTQ Idosas no Portugal Democrático (1974-2020)". In 2021 she was a pos-doctoral researcher at CES. After winning the national competition CEEC by FCT she has been a researcher since 2022 and will develop her project on LGBTQ+ access to healthcare until 2027. She works on disability studies and queer and crip studies through an intersectional approach and a specific focus on chronic illness. Her research interests include supercrips; medicalisation; chronic illness and invisible disabilities; accessibility; sexualities in Southern Europe; LGBTQ+ health.

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Identification

Personal identification

Full name: Mara Pieri

Author identifiers

Ciência ID: 9A12-82DA-3230
ORCID iD: 0000-0001-5864-7972

Email addresses

marapieri@ces.uc.pt (Personal)

Websites

https://ces.uc.pt/en/ces/pessoas/investigadoras-es/mara-pieri/ (Scholar)

Knowledge fields

Social Sciences - Sociology

Languages

Language	Speaking	Reading	Writing	Listening	Peer-review
Italian (Mother tongue)
English	Advanced (C1)	Proficiency (C2)	Advanced (C1)	Advanced (C1)	Advanced (C1)
Portuguese	Advanced (C1)	Advanced (C1)	Advanced (C1)	Advanced (C1)	Advanced (C1)
Spanish; Castilian	Intermediate (B1)	Upper intermediate (B2)	Intermediate (B1)	Upper intermediate (B2)	Intermediate (B1)

Education

	Degree	Classification
2015/10/01 - 2021/02/19 Concluded	Human Rights in Contemporary Societies (Doutoramento) Universidade de Coimbra Centro de Estudos Sociais, Portugal "Chroniqueeers. Time, care and visibility in narratives from queer people with a chronic illness." (THESIS/DISSERTATION)	Full marks, distinction and honours
2011 Concluded	Laurea Specialistica in Società, Territorio, Ambiente (Laurea Magistrale) Università degli Studi di Trento, Italy	110/110 cum laude
2008 Concluded	Sociologia (Laurea) Università degli Studi di Trento, Italy	107/110

Affiliation

Science

	Category Host institution	Employer
2022/06/06 - 2027/06/05	Contracted Researcher (Research)	Universidade de Coimbra Centro de Estudos Sociais, Portugal

Others

	Category Host institution	Employer
2021/09/01 - 2022/05/30	Post-doctoral researcher	Universidade de Coimbra Centro de Estudos Sociais, Portugal

2015/09 - 2021/03	PhD candidate	Universidade de Coimbra, Portugal
	Universidade de Coimbra Centro de Estudos Sociais, Portugal

Projects

Grant

	Designation	Funders
2015/10 - 2019/10	PhD research "Chroniqueers. Time, care and visibility in narratives from queer people with a chronic illness" PD/BD/114078/2015 PhD Candidate Universidade de Coimbra Centro de Estudos Sociais, Portugal	Fundação para a Ciência e a Tecnologia Concluded

Contract

	Designation	Funders
2022/06/06 - 2027/06/05	DIVERS - Diversity and inclusion in healthcare 2021.03925.CEECIND 10.54499/2021.03925.CEECIND/CP1698/CT0004 Principal investigator Universidade de Coimbra Centro de Estudos Sociais, Portugal	Fundação para a Ciência e a Tecnologia Ongoing

Other

	Designation	Funders
2022/01/01 - 2024/12/31	REMEMBER - Vivências de Pessoas LGBTQ Idosas no Portugal Democrático (1974-2020) PTDC/SOC-ASO/4911/2021 Researcher Universidade de Coimbra Centro de Estudos Sociais, Portugal	Fundação para a Ciência e a Tecnologia Ongoing

Outputs

Publications

Book	Mara Pieri. LGBTQ+ People with Chronic Illness. 2023. 10.1007/978-3-031-22071-5
Book chapter	Pieri, Mara. "Bem-estar das pessoas LGBTQ* com doença crónica: entre (in)visibilidade e precariedade". In Investigação e prática: abordagens interdisciplinares sobre a saúde e o bem-estar das pessoas LGBTI+, edited by Ana Sofia Antunes das Neves, 231-251. Portugal, 2022. Published Pieri, Mara. "Multiple estrangements in the twilight zone: chronic illness and queerness in Southern Europe". In The Sage Handbook of Global Sexualities, edited by Davy, Zowie; Santos, Ana Cristina; Bertone, Chiara; Thoreson, Ryan; Wieringa, Saskia E., 386-403. London, United Kingdom: SAGE, 2020. Published Pieri, Mara; Santos, Ana Cristina. "My body, my rules? Self-determination and feminist collective action in Southern Europe". In Routledge Handbook of Contemporary European Social Movements, edited by Flesher Fominaya, Cristina; Feenstra, Ramon A., 196-209. London, United Kingdom: Routledge, 2019. Published Pieri, Mara. "Are we humans or are we (queer) dancers? The Fascinating Paradox of Queer Rights". In As sociedades contemporâneas e os direitos humanos = Contemporary societies and human rights, edited by Martins, Bruno Sena, 415-436. EDITUS, 2018. Published • 10.7476/9788574555256.0021
Journal article	Esteves, Mafalda; Pieri, Mara. "At the Fringes of Pride Politics. Experiences of Bisexual and Chronically Ill LGBTQ+ People in Portugal". Lambda Nordica 28 2-3 (2023): 82-110. https://www.lambdanordica.org/index.php/lambdanordica/article/view/897. Open access • Published Pieri, Mara; Martins, Bruno Sena. "Entre mundos e lutas: identidades, interseccionalidades e resistência incorporada". Horizontes - Revista De Educação 11 18 (2022): 63-79. https://ojs.ufgd.edu.br/index.php/horizontes/article/view/16598. Open access • Published Pieri, Mara; Ferrero Camoletto Raffaella. "Doing gender and sexuality through experiences of illness and aging: between dominant and counter-discourses". About Gender - International Journal of Gender Studies 11 22 (2022): https://riviste.unige.it/index.php/aboutgender/article/view/2031. Open access • Published Pieri, Mara. "Fare ricerca su malattia cronica e vissuti LGBTQ+: riflessioni dal campo". AG About Gender - International Journal of Gender Studies 11 21 (2022): https://riviste.unige.it/index.php/aboutgender/article/view/1994. Open access • Published Mara Pieri. "When vulnerability got mainstream: Reading the pandemic through disability and illness". European Journal of Women's Studies (2022): https://doi.org/10.1177/13505068221090424. 10.1177/13505068221090424 Pieri, Mara. "Persone LGBTQ+ con malattia cronica in Italia: tra precarietà, cura e (in)visibilità". Salute e Società 2022 2 (2022): 84-97. https://www.francoangeli.it/riviste/SchedaRivista.aspx?IDArticolo=70828&Tipo=Articolo%20PDF&lingua=it&idRivista=107. Published Mara Pieri; Joana Brilhante. "“The Light at the End of the Tunnel”: Experiences of LGBTQ+ Adults in Portuguese Healthcare". Healthcare (2022): https://doi.org/10.3390/healthcare10010146. 10.3390/healthcare10010146 Pieri, Mara. "Elephants in the room: chronically ill people and access to LGBTQA+ spaces". Intersectional Perspectives: Identity, Culture, and Society 0 1 (2021): 12. http://dx.doi.org/10.18573/ipics.35. Published • 10.18573/ipics.35 Ana Cristina Santos; Mara Pieri. "Recolocando a autodeterminação na equação? Uma análise da ação coletiva feminista na Europa do Sul". Revista Em Pauta 19 47 (2020): https://doi.org/10.12957/rep.2021.56089. Published • 10.12957/rep.2021.56089 Pieri, Mara. "Illness comes to bed. Chronically ill lesbian women discuss sex, intimacy, and sexual practices". Journal of Lesbian Studies (2020): 1-15. http://dx.doi.org/10.1080/10894160.2020.1778882. Published • 10.1080/10894160.2020.1778882 Pieri, Mara. "Italia, 2030. Immaginare un futuro queer-crip". Roots & Routes 10 34 (2020): https://www.roots-routes.org/italia-2030-immaginare-un-futuro-queer-crip%e2%80%a8-di-mara-pieri/. Published Pieri, Mara. "The Sound that You Do Not See. Notes on Queer and Disabled Invisibility". Sexuality & Culture 23 2 (2019): 558-570. https://doi.org/10.1007/s12119-018-9573-8. Published • 10.1007/s12119-018-9573-8 Mara Pieri; Bruno Sena Martins. "Entre mundos e lutas: identidades, interseccionalidade e resistência incorporada". Horizontes - Revista de Educação (2002): https://doi.org/10.30612/hre.v11i18.16598. 10.30612/hre.v11i18.16598
Magazine article	Pieri, Mara. "Salute e diversità: le questioni LGBTQ+ nel sistema sanitario", Rivista QCode, 2022
Preface / Postscript	Pieri, Mara. "Prefazione all'edizione italiana di "Teoria Crip"". Preface to Teoria Crip. Segni culturali di queerness e disabilità. Bologna, Italy: Odoya. 2023. Published
Report	Pieri, Mara; Gomes, Conceição; Nolasco, Carlos; Carolina Carvalho; Carla Barros; Carla Soares; Fontes, Fernando; Henriques, Marina; Fernando, Paula. 2023. Franet National contribution to the Fundamental Rights Report 2023: Portugal. https://fra.europa.eu/sites/default/files/fra_uploads/frr_2023_portugal_en.pdf.
Website	Pieri, Mara. Chroniqueers. 2020. http://chroniqueers.it.

Other

Other output

Pazienti e utenti LGBTQ+ con malattie croniche. Costruire pratiche inclusive nell'accesso alla salute. Handbook for healthcare professionals "LGBTQ+ patients and users with chronic illnesses. Building inclusive practices in access to healthcare".. 2020. Pieri, Mara. http://chroniqueers.it/uploads/Guida_Chroniqueers_hq.pdf.

Activities

Oral presentation

	Presentation title	Event name Host (Event location)
2024/03/09	Academia, Healthcare and LGBTQ+ Ageing People: Constructing Interdisciplinary Knowledge and Inclusive Practices	International Conference on Medical Humanities Birbeck University (London, United Kingdom)
2024/02/02	Malattie croniche e accessibilità: le trame dell’invisibilità	TESTI PER IL FUTURO ALTERNATIVI Riflessioni e azioni verso l’accessibilità sostenibile Spazio KOR, Fondazione Fitzcarraldo (Italy)
2023/11/06	LGBTQ+ ageing people with chronic illness	Ageing with Pride: Healthcare for Older LGBTI people in Europe Council of Europe
2023/09/28	Hic Sunt Chroniqueers: queering time, ageing and vulnerability	Midterm Conference of the European Sociological Association Research Network Sexuality (RN23) University of Zagreb (Zagreb, Croatia)
2023/05/22	Twenty minutes at a time: queer-crip chronopolitics	Queer dis-eases: disruptive histories, politics, and bodies European University Institute (Florence, Italy)
2023/05/12	Persone trans e non-binarie con malattia e disabilità: intersezioni sommerse	Il benessere psicologico delle persone trans* nei contesti di vita university of Cagliari (Cagliari, Italy)
2023/04/04	We do it together: diálogos entre profissionais de saúde e comunidade LGBTQ+	XII Congresso Nacional de Sociologia FEUC-UC (Coimbra, Portugal)

Supervision

	Thesis Title Role	Degree Subject (Type) Institution / Organization
2021 - 2023	Political Participation, Social Movements and Promotion of LGBTQIA+ Rights - The role of LGBTQIA+ social movements/ associations in the advocacy of transgender healthcare in Portugal and France Supervisor of Maria Carolina Raposo	Universidade de Coimbra Faculdade de Economia, Portugal
2021 - 2023	PiùLGBTQ: ispirazioni europee per innovare la promozione della salute LGBTQIA+ tra attivismo e istituzioni in Italia Co-supervisor	Università degli Studi di Bologna Dipartimento di Scienze Politiche e Sociali, Italy

Event organisation

	Event name Type of event (Role)	Institution / Organization
2022/09/01 - 2023/09/30	Monsters Summer School III "Tracing, remembering and reclaiming queer lives " (2023/09/18 - 2023/09/22) Other	Universidade de Coimbra Centro de Estudos Sociais, Portugal
2019/01 - 2023/07	Seminar Series "SHARP TALKS: Sexuality, health and Human Rights" (2019/02/20 - 2023/07/20) Other (Member of the Organising Committee)	Universidade de Coimbra Centro de Estudos Sociais, Portugal
2023/06/01 - 2023/06/02	TRANSforming Endometriosis Research. Intensive workshop for an interdisciplinary understanding of endometriosis in the trans population from a socio-medical perspective. (2023/06/01 - 2023/06/02) Workshop (Co-organisor)	Fondation Brocher, Switzerland
2020/09 - 2021/05	Sexuality Research Network Online Seminar Series Spring 2021 (2021/01/26 - 2021/05/25) Other (Member of the Organising Committee)	European Sociological Association, France
2019 - 2020	CES Vai à Escola: "Todas diferentes, todas iguais! Valorizar as diferenças e crescer com a diversidade" - session of education for students in primary and secundary schools. (2019 - 2020)	Universidade de Coimbra Centro de Estudos Sociais, Portugal
2017 - 2018	Summer School "The Good, the Bad and the Monster: queers, crips and (other) misfits off the edge of the map" (2018/05/14 - 2018/05/18) Other (Member of the Organising Committee)	Universidade de Coimbra Centro de Estudos Sociais, Portugal

Committee member

	Activity description Role	Institution / Organization
2017 - Current	Member of the board of the Sexuality Research Network (RN23) Member	European Sociological Association, France
2018/07 - 2023/04	Coordination of the Research Stream on Sexuality and Gender Coordinator	Associação Portuguesa de Sociologia, Portugal

Conference scientific committee

	Conference name	Conference host
2024/10/02 - 2024/10/04	Maricorners 2024: IV congreso internacional de estudios interdisciplinares LGTBIAQ+ en español	Universidad de Valladolid
2018/02/13 - 2018/02/14	MidTerm Conference of the Sexuality Research Network - European Sociological Association	University of Cracow

Course / Discipline taught

	Academic session	Degree Subject (Type)	Institution / Organization
2022/12/13 - 2024/06/13	Master GEDM - Gender, Equality, Diversity and Inclusion XI edition	Invecchiamento e generazioni (Master)	Fondazione Giacomo Brodolini, Italy

Interview (newspaper / magazine)

	Activity description	Newspaper / Forum
2022/12/10	Interview titled "A Sexualidade e acesso à Saúde - uma entrevista à investigadora Mara Pieri"	Revista A Salto

Interview (tv / radio show)

	Program	Topic
2023/05/17 - 2023/05/17	IntervistAutori	Book "LGBTQ+ people with chronic illness. Chroniqueers in Southern Europe"

Journal scientific committee

	Journal title (ISSN)	Publisher
2024/05/01 - Current	Revista Crítica de Ciências Sociais (0254-1106)	Centro de Estudos Sociais

Scientific expedition

	Activity description	Institution / Organization
2022/04/05 - 2022/06/05	Visiting scholar	Università degli Studi di Torino, Italy

Distinctions

Award

2022	Menção Honrosa para Melhor Tese de Doutoramento em Estudos Culturais, Prémio "Virginia Quaresma" Universidade de Aveiro Centro de Línguas Literaturas e Culturas, Portugal
2020	Premio "Controtempo" per la divulgazione di progetti di ricerca CODICI Ricerca e Intervento cooperativa sociale onlus, Italy
2011	"M.Baiocchi" National Prize for best MA Thesis on LGBT issues DìGay Project, Italy