Identification
Personal identification
- Full name
- Cláudia de Freitas
Citation names
- De Freitas, Cláudia
Author identifiers
- Ciência ID
- 9D13-C4C1-0CC4
- ORCID iD
- 0000-0002-1828-8642
Email addresses
- claudia.defreitas@ispup.up.pt (Professional)
- c_defreitas@med.up.pt (Professional)
Websites
- https://ispup.up.pt/pessoas/cludia-de-freitas/?lang=en (Professional)
Knowledge fields
- Social Sciences - Sociology - Sociology
- Medical and Health Sciences - Health Sciences - Social Biomedical Sciences
- Social Sciences - Psychology - Psychology
Education
Degree | Classification | |
---|---|---|
2011
Concluded
|
Social Sciences (Doutoramento)
Universiteit Utrecht, Netherlands
"Participation in mental health care by ethnic minority users: Case studies from the Netherlands and Brazil." (THESIS/DISSERTATION)
|
Approved by unanimity |
2004
Concluded
|
Migration and Ethnic Studies (Mestrado)
Universiteit van Amsterdam, Netherlands
"Seeking the good doctor –‘when health knows no borders’. Cape Verdeans’ perceptions of health care providers in the Netherlands" (THESIS/DISSERTATION)
|
16,4 |
2001
Concluded
|
Psicologia (Licenciatura)
Universidade de Coimbra, Portugal
|
15 |
Affiliation
Science
Category Host institution |
Employer | |
---|---|---|
2024/09 - Current | Auxiliary Researcher (Research) | Universidade do Porto Instituto de Saúde Pública, Portugal |
2024/01 - 2024/07 | Auxiliary Researcher (Research) | Universidade do Porto Instituto de Saúde Pública, Portugal |
2018/01 - 2023/12 | Auxiliary Researcher (Research) | Universidade do Porto Instituto de Saúde Pública, Portugal |
2016/09 - 2017/12 | Postdoc (Research) | Universidade do Porto Unidade de Investigação em Epidemiologia, Portugal |
2012/02 - 2016/08 | Postdoc (Research) | ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal |
Teaching in Higher Education
Category Host institution |
Employer | |
---|---|---|
2017/09 - Current | Invited Assistant Professor (University Teacher) | Universidade do Porto Faculdade de Medicina, Portugal |
2015/01 - Current | Lecturer (University Teacher) | Universidade do Porto Instituto de Saúde Pública, Portugal |
2014/09 - Current | Visiting Professor (University Teacher) | Universidad de Sevilla Facultad de Psicología, Spain |
Positions / Appointments
Category Host institution |
Employer | |
---|---|---|
2021 - Current | Founder and coordinator of the Research Lab Public and Patient Involvement in Health | Laboratory for Integrative and Translational Research in Population Health (ITR), Portugal |
Others
Category Host institution |
Employer | |
---|---|---|
2016/09 - Current | Integrated researcher | Universidade do Porto Unidade de Investigação em Epidemiologia, Portugal |
2016/08 - Current | Collaboratoring Researcher | ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal |
2008/09 - Current | Collaboratoring Researcher | University of Seville - Center of Community Research and Action, Spain |
2012/02 - 2016/08 | Integrated Researcher | ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal |
2015/05 - 2015/06 | Visiting Fellow - Short-term Scientific Mission COST Action IS1103 | London School of Hygiene and Tropical Medicine Faculty of Public Health and Policy, United Kingdom |
2004/02 - 2011/12 | Integrated Researcher | Utrecht University - European Research Centre on Migration and Ethnic Relations (ERCOMER), Netherlands |
2004/02 - 2011/05 | PhD Candidate | Universiteit Utrecht Faculteit Sociale Wetenschappen, Netherlands |
2009/05 - 2009/06 | Visiting Fellow - Short-term Scientific Mission COST Action IS0603 | ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal |
2006/06 - 2007/06 | Visiting Researcher | Universidade Federal do Rio de Janeiro Escola de Serviço Social, Brazil |
2002/03 - 2003/04 | Junior Researcher | Universiteit Utrecht Faculteit Sociale Wetenschappen, Netherlands |
2000/09 - 2001/07 | Intern in Clinical Psychology - Family and couple therapy | Universidade de Coimbra Faculdade de Psicologia e de Ciências da Educação, Portugal |
Projects
Grant
Designation | Funders | |
---|---|---|
2016 - 2017 | Public engagement in reproductive technologies: citizen-centred care, research and innovation
SFRH/BPD/111344/2015
Post-doc Fellow
Universidade do Porto Instituto de Saúde Pública, Portugal
|
Fundação para a Ciência e a Tecnologia
Concluded
|
2012/02 - 2016 | Citizen participation in health governance in Portugal: practice-based recommendations for policy and action
SFRH/BPD/80530/2011
Post-doc Fellow
ISCTE-Instituto Universitário de Lisboa, Portugal
|
Fundação para a Ciência e a Tecnologia
Concluded
|
Contract
Designation | Funders | |
---|---|---|
2024/09 - Current | Public engagement with data-intensive biomedical research: inclusion, diversity and justice (INCLUDE+D)
2023.05828.CEECIND
Principal investigator
Universidade do Porto Instituto de Saúde Pública, Portugal
|
Fundação para a Ciência e a Tecnologia |
2023 - Current | Addressing mental health vulnerabilities from adolescence to older age: innovating prevention science for times of change
(ADVANCE)
101080323
Researcher
Københavns Universitet, Denmark
|
Horizon Europe |
2023 - Current | Blockchain.pt
C644918095-00000033
Researcher
ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal
|
European Union
Ongoing
|
2018 - 2022 | Public and patient involvement in health data governance: a people-centred approach to data protection in genetic diseases
(DATAGov)
POCI-01-0145-FEDER-032194
Principal investigator
Universidade do Porto Instituto de Saúde Pública, Portugal
|
Fundação para a Ciência e a Tecnologia
Concluded
|
2018 - 2022 | When do health inequalities start? Understanding the impact of childhood social adversity on health trajectories from birth
to early adolescence (HIneC)
POCI-01-0145-FEDER-029567
Researcher
Universidade do Porto Instituto de Saúde Pública, Portugal
|
Fundação para a Ciência e a Tecnologia
Concluded
|
2020 - 2020 | Anonymous mobilization of the return to normality to mitigate the COVID-19 epidemic (MARÉ)
Research4Covid-19 2nd ed 613213479-344
Researcher
Universidade de Lisboa Instituto Superior Técnico, Portugal
|
Fundação para a Ciência e a Tecnologia
Concluded
|
2016/06 - 2019 | Bionetworking and citizenship in gamete donation (ENGAgED)
FCT PTDC/IVC-ESCT/6294/2014
Researcher
Universidade do Porto Instituto de Saúde Pública, Portugal
|
Fundação para a Ciência e a Tecnologia
Concluded
|
2012 - 2014 | Health and Citizenship: Gaps and needs in intercultural health care to immigrant mothers
PTDC/CS-SOC/113384/2009
Researcher
ISCTE-Instituto Universitário de Lisboa, Portugal
|
Fundação para a Ciência e a Tecnologia
Concluded
|
2007 - 2011 | Public health policies and therapeutic practices: suffering and treatment strategies of migrants in the Greater Lisbon area.
PTDC/ANT/65857/2006
Researcher
ISCTE-Instituto Universitário de Lisboa Centro de Estudos de Antropologia Social, Portugal
|
Fundação para a Ciência e a Tecnologia
Concluded
|
Other
Designation | Funders | |
---|---|---|
2024 - Current | Rede Iberoamericana de Investigação Qualitativa em Saúde (REDICS)
NA
Other
Instituto de Salud Carlos III, Spain
|
Agencia Española de Cooperación Internacional para el Desarrollo
Ongoing
|
2021 - Current | Navigating Knowledge Landscapes (NKL) Research Network
NA
Other
Østofold University College – Department for Health and Social Studies, Norway
|
|
2021 - 2024 | Solidarity in times of a pandemic: What do people do, and why? A comparative and longitudinal qualitative study (SolPan)
NA
Other
Universität Wien Institut für Politikwissenschaft, Austria
|
|
2020 - 2022 | WHO Collaborating Center for Migrant’s Involvement in Health Research
NA
Other
The University of Limerick, Public and Patient Involvement (PPI) Research Unit, Ireland
|
World Health Organisation - Regional Office for Europe
Ongoing
|
2019 - 2022 | Your DNA, Your Say. Public attitudes on the sharing of genomic information
206194/Z/17/Z
Other
Wellcome Genome Campus - Wellcome Sanger Institute, United Kingdom
|
Wellcome Trust
Ongoing
|
2018 - 2020 | Making asylum systems work in the EU
Fundação Calouste Gulbenkian
Principal investigator
Universidade do Porto Instituto de Saúde Pública, Portugal
|
Fundação Calouste Gulbenkian
Concluded
|
2018 - 2019 | Provision of training for first-line health professionals and law enforcement officers working at local level with migrants
and refugees and training of trainers
Chafea/2016/Health/12 EC-DG S
Other
Universidade do Porto Instituto de Saúde Pública, Portugal
|
European Comission - DG SANTE/ International Organization for Migration
Ongoing
|
2011 - 2016 | Adapting European Health Systems to Diversity (ADAPT)
COST Action IS1103
Technical development
ISCTE-Instituto Universitário de Lisboa, Portugal
|
European Union Research and Technology Development Framework Programme
Concluded
|
2006 - 2007 | Transversões - Mental health, deinstitutionalization and psychosocial approaches
.
Researcher
Universidade Federal do Rio de Janeiro, Brazil
|
Conselho Nacional de Desenvolvimento Científico e Tecnológico
Concluded
|
2006 - 2007 | User participation in mental health care in Suriname: the implementation of a client council
.
Principal investigator
Cliëntenraad RIAGG Rijnmond , Netherlands
|
Riagg Rijnmond
Concluded
|
2002 - 2003 | Good practice in mental health and social care for refugees and asylum seekers
.
Researcher
Universiteit Utrecht, Netherlands
|
European Commission - European Refugee Fund
Concluded
|
Outputs
Publications
Book |
|
Book chapter |
|
Conference abstract |
|
Conference paper |
|
Conference poster |
|
Edited book |
|
Journal article |
|
Journal issue |
|
Report |
|
Website |
|
Other
Dataset |
|
Activities
Oral presentation
Presentation title | Event name Host (Event location) |
|
---|---|---|
2024 | Invited speaker - Fairness and equity in health AI systems: collaborative governance, institutional trust and algorithmic justice | II DigEUCit International Conference - Implementing AI for good
Universidade do Porto Faculdade de Direito
|
2024 | Preferences for engagement in decision-making about health data sharing for research among rare diseases patients and informal carers | IJUP - 17th Young Researchers Meeting of the University of Porto
Universidade do Porto Faculdade de Economia
|
2024 | Invited speaker - Panel "How to get co-creation right in mental health research" | European Mental Health Week
Mental Health Europe
|
2024 | Invited speaker - Round table "Ecological and health crisis". Polycrisis, digitisation and trust in health systems | 3rd IS-UP International Summerschool - Polycrisis challenges the sociological imagination
Universidade do Porto Faculdade de Letras
|
2024 | Co-creation in mental health promotion research: Anticipating risks and tensions, nurturing trust and cultivating transformative change | 16th European Sociological Association Conference
Universidade do Porto Faculdade de Letras
|
2024 | Invited speaker - Methods for health research co-creation | DECIDE Co-creation Seminar
i3S - Instituto de Investigação e Inovação em Saúde, Centro de Genética Preditiva e Preventiva
|
2024 | Keynote speaker - Co-creation in mental health research: challenges and affordances | 16th Symposium on Mental Health Research
Sant Joan de Déu Research Institute
|
2023 | Invited speaker - Mesa Redonda "Utilização institucional dos dados codificados: Investigação, gestão interna, avaliação da produção hospitalar" (Health data reuse: hospital research, management and evaluation) | 14º Congresso da Associação dos Médicos Auditores e Codificadores Clínicos (AMACC)
Centro Hospitalar Universitário São João (CHUSJ)
|
2023 | Data counselling: providing support for decision-making about genomic and health data sharing for research | 56th European Human Genetics Conference
European Society of Human Genetics
|
2023 | Invited speaker - Com os olhos postos no futuro: a sociologia numa perspetiva interdisciplinar [With our eyes set on the future: sociology from an interdisciplinary perspective] | Conferência 30 anos de "Saberes e Poderes no Hospital" - Diálogos e Debates
ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia
|
2023 | Participatory governance of medical AI systems: ethical and societal challenges and implications | 2nd International Conference on Ethics of Artificial Intelligence
Faculdade de Letras da Universidade do Porto
|
2023 | Discussant – Book: “Bioethics and racism. Practices, conflicts, negotiations and struggles.” |
Associação Cultural Gato Vadio
|
2023 | Invited speaker - Public participation in health research, education and training | NAWA Best Practices Seminar
Polish National Agency for Academic Exchange (NAWA)
|
2022 | Invited speaker - A participação de pessoas com doenças raras na governação de dados de saúde | Dia Mundial das Doenças Raras 2022
Instituto Nacional Dr. Ricardo Jorge
|
2022 | Getting involved in decisions about health data sharing, access, use and reuse? The views of rare disease patients and carers | The 5th Global Public Health Conference 2022
The International Institute of Knowledge Management (Online)
|
2022 | Involvement in decision-making about health data sharing, access, use and reuse: the views of rare diseases patients and carers | IJUP - 15th Young Researchers Meeting U. Porto
Universidade do Porto
|
2022 | Public and patient perspectives about involvement in health data governance | International Conference Public and Patient Involvement in Health data Governance
Universidade do Porto Instituto de Saúde Pública
|
2021 | Patient and public involvement in the digitalization of healthcare | IV ISA Forum of Sociology
International Sociological Association (online forum)
|
2021 | Science communication and the Covid-19 pandemic: constructing public engagement | 5th Navigating Knowledge Landscapes' International Conference
Mid Sweden University (online)
|
2021 | Sharing genetic data for research purposes: expectations and concerns by patients and carers | 15th ESA Conference
European Sociological Association (Barcelona/online)
|
2021 | Inclusive co-creation in health research? Involving patients and carers in the governance of health data | 15th ESA Conference
European Sociological Association (Barcelona/online)
|
2021 | Discussant - Book: "Exploring Healthcare bricolage in Europe's superdiverse neighbourhoods" | 53rd Annual British Sociological Association Medical Sociology Conference
British Sociological Association
|
2021 | Keynote speaker - Saúde * Cidadão * Comunidade: Construção participada e partilhada. A participação pública na governação de dados de saúde (Health * Citizen * Community: Shared and participatory construction. Public participation in health data governance) | 9ª Conferência Valor APAH - Associação Portuguesa de Administradores Hospitalares
Associação Portuguesa de Administradores Hospitalares
|
2021 | Invited speaker - Candidaturas com Sucesso... Concurso de Projetos em Todos os Domínios Científicos da Fundação para a Ciência e Tecnologia | Candidaturas com Sucesso...
Universidade do Minho Instituto de Ciências Sociais
|
2021 | Invited speaker - Participación ciudadana en la gobernanza de datos de salud: confianza, inclusión e integración. (Public health participation in health data governance: trust, inclusion and integration) | Salud Romaní y Participación en Contextos de Discriminación. Retos y Oportunidades para la Psicología de la Intervención Social
y Comunitaria (Roma health and participation in contexts of discrimination)
Facultad de Psicologia, Universidad de Sevilla
|
2020 | Invited speaker - Painel "Igualdade na saúde para todos" (Equity in health for all) | Semana Europeia da Saúde Pública 2020
Associação Nacional de Médicos de Saúde Pública
|
2020 | Benefits and risks of sharing genetic data for research purposes: the views of patients and carers | 16th World Congress on Public Health
World Federation of Public Health Associations (online congress)
|
2020 | Participation in data generation and information sharing: are patients and carers willing to engage? | 16th World Congress on Public Health
World Federation of Public Health Associations (online congress)
|
2020 | Public preferences for involvement in the governance of health data | 16th World Congress on Public Health
World Federation of Public Health Associations (online congress)
|
2019 | Public participation in health data governance: a scoping review | 12th European Public Health Conference
European Public Health Association (Marseille, France)
|
2019 | Solidarity and reciprocity in data governance: information sharing among gamete donors and recipients | 12th European Public Health Conference
European Public Health Association (Marseille, France)
|
2019 | Data governance in gamete donation: policy on information sharing among gamete donors and recipients | 12º Encontro da Investigação Jovem da Universidade do Porto (I'JUP 19)
Universidade do Porto (Porto, Portugal)
|
2018 | Ethical and methodological dilemmas in mixed-methods research: an empirically-based perspective about gamete donation. | 2nd European Congress of Qualitative Inquiry
KU Leuven Faculty of Social Sciences (Leuven, Belgium)
|
2018 | Anonymized donors and recipients’ intersections in the same space: ethical and practical considerations | 2nd European Congress of Qualitative Inquiry
KU Leuven Faculty of Social Sciences (Leuven, Belgium)
|
2018 | Contents about gamete donation on IVF clinics websites: how to assure that the information provided meets people’s needs? | 2nd European Congress of Qualitative Inquiry
KU Leuven Faculty of Social Sciences (Belgium)
|
2018 | Keynote speaker - A comunidade CDG: necessidade e estratégias para promover o cuidado e a investigação | Think metabolic, Think CDG! Educational Program of Excellence on Congenital Disorders of Glycosylation – APCDG-DMR
Associação Portuguesa de CDG - APCDG
|
2018 | Roma health governance in Spain: an assessment of policy implementation | 1rst World Congress on Migration, Ethnicity, Race and Health
University of Edinburgh (Edinburgh, United Kingdom)
|
2018 | Migrant and ethnic minority participation in health decision-making: achieving inclusive participatory spaces | 1rst World Congress on Migration, Ethnicity, Race and Health
University of Edinburgh (Edinburgh, United Kingdom)
|
2017 | Invited speaker - Public and patient involvement in assessing needs and developing social innovations for rare diseases: the case of CDG. | Think metabolic, Think CDG! Educational Program of Excellence on Congenital Disorders of Glycosylation - APCDG-DMR/ Ordem
dos Médicos
Associação Portuguesa de CDG - APCDG
|
2017 | Invited speaker - Engaging publics: migrant participation in health care decision-making | ASPHER Directors' and Deans' Retreat
Association of Public Health Schools in the European Region - ASPHER
|
2017 | Ethical and methodological challenges to public engagement in research about anonymous gamete donation: rethinking citizen science | ISA RC10: International Conference Democracy and Participation in the 21st Century
International Sociological Association (Lisbon, Portugal)
|
2017 | Public involvement in health policy-making: an exclusive practice? | ISA RC10: International Conference Democracy and Participation in the 21st Century
International Sociologial Association (Lisbon, Portugal)
|
2017 | Invited speaker - The needs of people affected by CDG and community-framed strategies to address them | 3rd World Conference on CDG
Associação Portuguesa de CDG - APCDG
|
2017 | Sampling procedures on mixed-methods research with parental couples: challenges from joint interviews | 7th Conference of the European Survey Research Association (ESRA),17-21 July 2017
(Lisbon, Portugal)
|
2017 | Couple as the unit of analysis: ethics in sampling and data collection drawn from a Portuguese mixed-methods study | 21st International Epidemiological Association World Congress of Epidemiology
(Saitama, Japan)
|
2017 | Como envolver o público numa pesquisa sobre doação de gâmetas? Repensar metodologias na ciência cidadã em regimes de anonimato | 3ª Conferência da Secção Temática Conhecimento, Ciência e Tecnologia da Associação Portuguesa de Sociologia
(Braga, Portugal)
|
2017 | Socioethical debates about gamete donation in Portugal: questions (un)answered |
Universidade do Porto (Porto, Portugal)
|
2016 | Patient-centred care in embryo donation for research | European Sociological Association Mid-Term Conference "New directions in health care work and organisations"
(Lisboa, Portugal)
|
2016 | Parental involvement in care in Neonatal Intensive Care Units | ESA Mid-Term Conference "New directions in health care work and organisations"
European Sociological Association (Lisboa, Portugal)
|
2016 | Migrant and ethnic minority involvement in healthcare policy and community interventions: a scoping review | EUPHA's 6th European Conference on Migrant and Ethnic Minority Health
European Public Health Association (Oslo, Norway)
|
2016 | User involvement: achievements, challenges and future directions | COST Action IS1103 ADAPT meeting
(Oslo, Norway)
|
2016 | A (in)disponibilidade de dadores: como contornar as dificuldades? | XXXIV Jornadas Internacionais de Estudos da Reprodução
(Tróia, Portugal)
|
2016 | Invited speaker - "Aproximación bottom-up: Investigación de Base Comunitaria" [Bottom-up approach: community-based research] | Mejora del bienestar inmigrante en Andalucía. Nuevas aproximaciones. [Improving migrants wellbeing in Andalucia]
Junta de Andalucia, Consajería de la Presidencia y Administración Local - Centro de Estudios Andaluces
|
2016 | A public health approach to patient-centredness in embryo research | 9th European Public Health Conference (EUPHA)
European Public Health Association (Vienna, Austria)
|
2016 | Patient and public participation in needs assessment and social innovations linked to rare diseases | 9th European Public Health Conference (EUPHA) Preconference on Patient participation in health care research and innovation
European Public Health Association (Vienna, Austria)
|
2015 | How diversity sensitive is public and patient participation policy? Results from international comparisons’ | COST Action IS1103 ADAPT meeting: Participatory approaches to health among groups in vulnerable situations
(Porto, Portugal)
|
2015 | Invited speaker - Public and patient involvement in rare diseases | 2nd World Conference on Congenital Disorders of Glycosylation
Associação Portuguesa de CDG - APCDG
|
2015 | Parenting very preterm infants and stress in Neonatal Intensive Care Units | 8th European Public Health Conference
EUPHA (Milan, Italy)
|
2014 | Diversidade, equidade e participação cidadã em saúde | II Workshop Internacional Saúde e cidadania: equidade nos cuidados de saúde materno-infantil em tempos de crise
CIES-IUL (Lisbboa, Portugal)
|
2014 | Levering change: barriers to and facilitators of migrant user involvement in healthcare governance | 5th EUPHA European Conference on Migrant and Ethnic Minority Health
EUPHA & Andalusian School of Public Health (Granada, Spain)
|
2014 | Do estigma à inclusão: motivações para a participação cidadã na promoção da saúde mental | VIII Congresso Português de Sociologia
Associação Portuguesa de Sociologia (Évora, Portugal)
|
2014 | Transformative change in health policy: the impact of participation by socially disadvantaged minority groups | COST Action IS1103 meeting: Integrating migrant and ethnic minority users’ perspectives in health care: strategies, measurement
and impact
(Lisboa, Portugal)
|
2014 | Invited speaker - Cidadania, equidade e diversidade em saúde: a voz dos cidadãos | Seminário Desigualdades, Diversidade e Saúde em Tempos de Crise
Universidade do Minho Instituto Centro Interdisciplinar de Ciências Sociais
|
2013 | Bringing migrant and ethnic minority users’ perspectives into health policy and health care: The ADAPT project | 14th Biennial conference of The Society for Community Research and Action (SCRA)
American Psychology Association (Miami, United States)
|
2013 | Fostering inclusive citizen participation in health: the engagement of minority groups in healthcare governance | European Sociological Association 11th Conference – Crisis, Critique and Change
ESA (Turin, Italy)
|
2013 | Beyond the usual suspects: increasing the representation of disadvantaged minorities in health participatory spaces in times of crisis | European Sociological Association 11th Conference – Crisis, Critique and Change
ESA (Turin, Italy)
|
2013 | What is missing in user involvement policy? Barriers to and enablers of participation in health care by groups at risk of exclusion | COST Action IS1103 Meeting: User involvement
School of Nursing, University of Seville (Seville, Spain)
|
2012 | Determinantes da participação de utentes de minorias desfavorecidas em saúde mental | V Congresso Ibero-americano de Pesquisa Qualitativa em Saúde
(Lisboa, Portugal)
|
2012 | Mobilising, empowering and involving disenfranchised groups in health care | 5th Annual European Public Health Association Preconference - Integrating the patient’s perspective in public health and health
care
European Public Health Association (St. Julian, Malta)
|
2012 | A participação de utentes migrantes enquanto factor promotor de maior equidade em saúde | III Jornadas de Ciência Sociais e Humanas em Saúde - Saúde: vias de reflexão
Escola Superior de Tecnologia da Saúde de Lisboa (Lisboa, Portugal)
|
2012 | What lies ahead? Setting goals for research on inclusive user involvement | COST Action IS1103 “Strategic planning meeting for sub-project 8 (User Involvement): Bringing migrant and ethnic minority
users’ perspectives into health policy and health care”
COST Action IS1103 (Lisboa, Portugal)
|
2009 | Civil society, CSOs and the state: Reflections from the field of migrant health in Europe | COST Action Home Workshop The role of NGOs and CSOs in health care for migrants and ethnic minorities
COST Action Home (Health and Social Care for Migrants and Ethnic Minorities in Europe) (Lisboa, Portugal)
|
2008 | Cape Verdean’s participation in mental health care in the Netherlands: Silent migrants? | 5th IMISCOE Cluster B5 Workshop on Migration, Integration and the Internationalisation of Health care
(Lisboa, Portugal)
|
2007 | User involvement in mental health: The Netherlands | Joint Meeting of the WHO-HPH Task Force on Migrant-Friendly and Culturally Competent Health Care and COST Action Home (Health
and Social Care for Migrants and Ethnic Minorities in Europe)
(Brighton, United Kingdom)
|
2005 | ‘Health has no borders’: Cape Verdean immigrants in the Netherlands and the transnational quest for health care across Europe | International Conference on Cape Verdean Migration and Diaspora
(Lisboa, Portugal)
|
2005 | Cape Verdean immigrants in the Netherlands and the transnational quest for health care across Europe | 2nd IMISCOE Cluster B5 Workshop
(Lisboa, Portugal)
|
2005 | Participating: until how far? Mapping migrant and ethnic minorities’ participation in mental health care in the Netherlands | 2nd Annual IMISCOE Conference
(Osnabrück, Germany)
|
2003 | Survey of care provisions for asylum seekers and refugees in Portugal | Conference Good Practices in Mental Health Care and Social Care for Asylum-Seekers and Refugees
(Brussels, Belgium)
|
Supervision
Thesis Title Role |
Degree Subject (Type) Institution / Organization |
|
---|---|---|
2024 - Current | Co-creation of stigma reduction strategies for mental health promotion among vulnerable populations
Co-supervisor of Ana Luíza Melo
|
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2024 - Current | O impacto das tecnologias digitais na violência em relações de intimidade
Co-supervisor of Diana Moreira
|
Ciências Médicas (PhD)
Universidade do Porto Instituto de Ciências Biomédicas Abel Salazar, Portugal
|
2024 - Current | Cyberstalking como forma de abuso nos jovens em casos de violência em relações de intimidade
Co-supervisor of Luísa Neto
|
Medicina Legal (Master)
Universidade do Porto Instituto de Ciências Biomédicas Abel Salazar, Portugal
|
2023 - Current | Saúde global, migrações e práticas de prevenção, promoção e educação em saúde na União Europeia: Pensar o direito à saúde
a partir de uma perspetiva decolonial
Co-supervisor of Miguel Correia
|
Ciências da Educação (PhD)
Universidade do Porto Faculdade de Psicologia e de Ciências da Educação, Portugal
|
2021 - Current | Fertility preservation in Portugal and Moldova: awareness and atitudes of healthcare providers
Co-supervisor of Alla Tirsina
|
Saúde Pública (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
|
2021 - Current | Public and patient participation in health data governance
Supervisor of Nuno Parente
|
Saúde Pública (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
|
2023 - 2024 | Digital health: patient generated data and use of digital technologies
Supervisor of Yanni Caruso
|
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2022 - 2024 | Preferences of rare diseases patients and informal caregivers for engagement in decisions about sharing health data for research
Supervisor of Ana Pinho
|
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2021 - 2022 | Public and patient involvement in decision-making about health data sharing, access, use and reuse for rare diseases research
and care
Supervisor of Ngozi Paschaline Nwebonyi
|
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2016 - 2022 | Gamete donation: towards a people-centered approach to healthcare and research
Co-supervisor of Sandra Pinto da Silva
|
Saúde Pública (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
|
2016 - 2022 | Breastfeeding, industry marketing and migration in the era of globalization
Supervisor of Cosima Lisi
|
Saúde Pública Global (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
|
2019 - 2021 | Quality of life of Syrian migrants living in Portugal
Co-supervisor of Walaa Kinaan
|
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2019 - 2020 | Donating gametes to family and friends: the views of donors and recipients
Co-supervisor of Alla Tirsina
|
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2016 - 2020 | Governance of gamete donation: insights for ethically sustainable policies and guidelines
Co-supervisor of Inês Baía
|
Saúde Pública (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
|
2018 - 2019 | Involvement in maternal care by migrant women in Portugal
Supervisor of Janka Rebecca Massag
|
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2018 - 2019 | People-centred policy for data governance in gamete donation: access to information by gamete donors and recipients
Supervisor of Tiago Maia
|
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2016 - 2017 | Enabling factors of the Community Health Worker Program in the Fiji Islands
Supervisor of Jyotishna Mudaliar
|
Public Health (Master)
Fiji National University, Fiji
|
2015 - 2016 | Efeitos da crise económica e das políticas de austeridade na saúde e no acesso aos cuidados de saúde da população imigrante
em quatro países do Sul da Europa: revisão scoping
Co-supervisor of Nuno Jordão
|
Migraciones Internacionales, Salud y Bienestar (Master)
Universidad de Sevilla, Spain
|
Event organisation
Event name Type of event (Role) |
Institution / Organization | |
---|---|---|
2024 - 2024 | Seminar "Promoting Roma health equity through co-creation: a conceptual framework and methodological strategies", ISPUP Open
Seminars (2024/04/19)
Seminar (Co-organisor)
|
Universidade do Porto Instituto de Saúde Pública, Portugal |
2023 - 2023 | Conferência 30 anos de "Saberes e Poderes no Hospital" - Diálogos e Debates (2023/05/23)
Conference (Member of the Organising Committee)
|
ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal |
2022 - 2022 | International Conference "Public and Patient Involvement in Health data Governance" (2022/07/15)
Conference (President of the Organising Committee)
|
Universidade do Porto Instituto de Saúde Pública, Portugal |
2021 - 2021 | Film session and debate on "The human face of Big Data", CineISPUP - scientific culture dissemination event (2021/05/05)
Other (Co-organisor)
|
Universidade do Porto Instituto de Saúde Pública, Portugal |
2021 - 2021 | Film session and debate on "Coded Bias", CineISPUP - scientific culture dissemination event
(2021/12/16)
Other (Co-organisor)
|
Universidade do Porto Instituto de Saúde Pública, Portugal |
2019 - 2019 | Seminar "Citizen participation in health", ISPUP Open Seminars (2019/12/20)
Seminar (Co-organisor)
|
Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal |
2019 - 2019 | Film session and debate on "The immortal life of Henrietta Lacks", CineISPUP - scientific culture dissemination event (2019/05/12)
Other (Co-organisor)
|
Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal |
2018 - 2018 | Symposium "Innovative approaches to ethical and methodological challenges in health research" (with Susana Silva), 2nd European
Congress of Qualitative Inquiry (2018/02/06 - 2018/02/09)
Symposium (Co-organisor)
|
Katholieke Universiteit Leuven - Campus Brussel, Belgium |
2018 - 2018 | Workshop "Migrant and ethnic minority participation in health decision-making: achieving inclusive participatory spaces" (with
Anne MacFarlane and David Ingleby), 1rst World Congress on Migration, Ethnicity, Race and Health (2018/05/17 - 2018/05/19)
Workshop (Co-organisor)
|
The University of Edinburgh, United Kingdom |
2016 - 2016 | Session "Patient-centred care and public involvement in health technologies" (with Alicia Renedo and Susana Silva), European
Sociological Association Mid-Term Conference (2016/05/18 - 2016/05/20)
Other (Co-organisor)
|
Universidade Nova de Lisboa, Portugal |
2016 - 2016 | Seminar "Saúde e doença: sociologia e saúde pública em diálogo" [Health and illness: sociology and public health in dialogue],
ISPUP Open Seminars (2016/05/27)
Seminar (Co-organisor)
|
Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal |
2015 - 2015 | Working Group meeting COST Action IS1103 "Participatory approaches to health among groups in vulnerable situations" (2015/04/29 - 2015/04/30)
Meeting (President of the Organising Committee)
|
European Cooperation in Science and Technology, Belgium |
2014 - 2014 | 2nd International Workshop "Health and Citizenship: Equity in maternal-child healthcare in times of crisis” (with Beatriz
Padilla et al.) (2014/02/27 - 2014/02/28)
Workshop (Member of the Organising Committee)
|
Universidade do Minho Centro Interdisciplinar de Ciências Sociais, Portugal |
2014 - 2014 | Working Group meeting COST Action IS1103 "Integrating migrant and ethnic minority users’ perspectives in health care: strategies,
measurement and impact" (2014 - 2014)
Meeting (President of the Organising Committee)
|
European Cooperation in Science and Technology, Belgium |
2014 - 2014 | Seminar "Desigualdade, diversidade e saúde em tempos de crise" [Inequalities, diversity and health in times of crisis](with
Beatriz Padilla, Sonia Hernandez-Plaza, Alejandra Ortiz) (2014/11/04)
Seminar (Member of the Organising Committee)
|
Universidade do Minho Centro Interdisciplinar de Ciências Sociais, Portugal |
2013 - 2013 | Working Group meeting COST Action IS1103 "User involvement" (2013 - 2013)
Meeting (President of the Organising Committee)
|
European Cooperation in Science and Technology, Belgium |
2012 - 2012 | Session "Diversidade em saúde: necessidades e barreiras no acesso aos cuidados" [Diversity in health: needs and barriers to
access to health care" (with Beatriz Padilla and Sonia Hernandez-Plaza), III Jornadas de Ciência Sociais e Humanas em Saúde (2012/11/23 - 2012/11/24)
Other (Co-organisor)
|
Instituto Politécnico de Lisboa Escola Superior de Tecnologia da Saúde de Lisboa, Portugal |
2012 - 2012 | Session "Diversidade em saúde: estratégias de promoção de equidade nos cuidados" [Diversity in health: strategies to promote
equity in health care](with Beatriz Padilla and Sonia Hernandez-Plaza), III Jornadas de Ciência Sociais e Humanas em Saúde
(2012/11/23 - 2012/11/24)
Other (Member of the Organising Committee)
|
Instituto Politécnico de Lisboa Escola Superior de Tecnologia da Saúde de Lisboa, Portugal |
2012 - 2012 | Working Group meeting COST Action IS1103 "Bringing migrant and ethnic minority users’ perspectives into health policy and
health care" (2012 - 2012)
Meeting (President of the Organising Committee)
|
European Cooperation in Science and Technology, Belgium |
2007 - 2009 | ERCOMER Monthly Research Seminars (2007/09/01 - 2009/06/30)
Seminar (Member of the Organising Committee)
|
Utrecht University - European Research Centre on Migration and Ethnic Relations (ERCOMER), Netherlands |
2001 - 2001 | Conference Jornadas de Psicologia Clínica Sistémica: (Des)Encontros no Casal (with Adriana Silva, Eliana Costa, Nuno Craveiro,
Ester Eche) (2001/05/13 - 2001/05/14)
Conference (Member of the Organising Committee)
|
Universidade de Coimbra Faculdade de Psicologia e de Ciências da Educação, Portugal |
Event participation
Activity description Type of event |
Event name Institution / Organization |
|
---|---|---|
2024 - 2024 | Moderator - "A resposta dos serviços de saúde às populações migrantes" [Health services' response to migrants' needs] | Seminário Saúde das Populações
Universidade do Porto Faculdade de Medicina, Portugal
|
2024 - 2024 | Moderator - "Promoting Roma health equity through co-creation: a conceptual framework and methodological strategies" by Daniela
Miranda
Seminar
|
ISPUP Open Seminars
Universidade do Porto Instituto de Saúde Pública, Portugal
|
2023 - 2023 | Moderator - Session "Data Governance"
Conference
|
I International Conference DigEUCit A Digital Europe for Citizens
Universidade do Porto Faculdade de Direito, Portugal
|
2023 - 2023 | Moderator - Design thinking workshop
Conference
|
6th World Conference on CDG
Universidade NOVA de Lisboa Faculdade de Ciências e Tecnologia, Portugal
|
2022 - 2022 | Chair - Opening session
Conference
|
International Conference Public and Patient Involvement in Health data Governance
Universidade do Porto Instituto de Saúde Pública, Portugal
|
2022 - 2022 | Chair - Closing session
Conference
|
International Conference Public and Patient Involvement in Health data Governance
Universidade do Porto Instituto de Saúde Pública, Portugal
|
2021 - 2021 | Moderator - Film and debate session "The human face of Big Data" | CineISPUP - science communication event
Universidade do Porto Instituto de Saúde Pública, Portugal
|
2021 - 2021 | Moderator - Film and debate session "Coded Bias" | CineISPUP - science communication event
Universidade do Porto Instituto de Saúde Pública, Portugal
|
2019 - 2019 | Moderator - "Citizen participation in health" by Sofia Crisóstomo
Seminar
|
ISPUP Open Seminars
Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal
|
2019 - 2019 | Moderator - "The immortal life of Henrietta Lacks"
Other
|
CineISPUP - scientific communication event
Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal
|
2018 - 2018 | Chair - "Innovative approaches to ethical and methodological challenges in health research"
Congress
|
2nd European Congress on Qualitative Inquiry
Katholieke Universiteit Leuven - Campus Brussel, Belgium
|
2017 - 2017 | Commentator - Film "I, Daniel Blake"
Other
|
CineISPUP - science communication event
Universidade do Porto Instituto de Saúde Pública, Portugal
|
2016 - 2016 | Moderator - "Saúde e doença: sociologia e saúde pública em diálogo" [ [Health and illness: sociology and public health in
dialogue]
Seminar
|
ISPUP Open Seminars
Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal
|
2015 - 2015 | Moderator - "Participatory approaches to health among groups in vulnerable situations"
Meeting
|
COST Action IS1103 meeting
European Cooperation in Science and Technology, Belgium
|
2014 - 2014 | Moderator - "Use of pre- and post-natal care by non-western women in the Netherlands"¿ by Walter Devillé
Workshop
|
II Workshop Internacional Saúde e cidadania: equidade nos cuidados de saúde materno-infantil em tempos de crise
Centro de Estudos e Investigação em Sociologia - Instituto Universitário de Lisboa (CIES-IUL), Portugal
|
2014 - 2014 | Rapporteur - "Strategies to increase the inclusiveness of participatory processes: concluding remarks and discussion"
Meeting
|
COST Action IS1103 meeting
European Cooperation in Science and Technology, Belgium
|
2014 - 2014 | Moderator - "Integrating migrant and ethnic minority users¿ perspectives in health care: strategies, measurement and impact"
Meeting
|
COST Action IS1103 meeting
European Cooperation in Science and Technology, Belgium
|
2013 - 2013 | Rapporteur - "User involvement: meeting concluding remarks"
Meeting
|
COST Action IS1103 Meeting
European Cooperation in Science and Technology, Belgium
|
2013 - 2013 | Invited speaker - Participación ciudadana en salud. Promoviendo el involucramiento de colectivos en riesgo de exclusión [Citizen
participation in health. Promoting the involvement of groups at riks of exlcusion"]
Workshop
|
PROCOMDI: Avances de Investigación
Facultad de Psicologia, Universidad de Sevilla, Spain
|
2012 - 2012 | Invited speaker - Oportunidades de mudança: uma voz cabo-verdiana nos cuidados de saúde mental holandeses | Seminário + Saúde, Género e Imigração |
2012 - 2012 | Invited speaker - Relatos de investigação na América Latina: A participação cidadã em saúde mental no Brasil | Curso de Verão - América Latina Hoje
ISCTE-Instituto Universitário de Lisboa, Portugal
|
2012 - 2012 | Invited speaker - Participação cidadã
Seminar
|
Seminário Preparatório do Fórum Cidadania pelo Estado Social - Serviço Nacional de Saúde
Associação 25 de Abril , Portugal
|
2012 - 2012 | Moderator - "Bringing migrant and ethnic minority users perspectives into health policy and health care"
Meeting
|
COST Action IS1103 meeting
European Cooperation in Science and Technology, Belgium
|
2012 - 2012 | Rapporteur - "Saúde, participação e migrações" [Health, participation and migration]
Other
|
Fórum de Pesquisas CIES: Os múltiplos olhares das ciências sociais sobre a saúde
Centro de Estudos e Investigação em Sociologia - Instituto Universitário de Lisboa (CIES-IUL), Portugal
|
2012 - 2012 | Invited speaker - Participación de los Usuarios Inmigrantes en los Cuidados de Salud Mental: Desafíos y Logros [Participation
in mental health care by immigrant users: challenges and opportunities]
Symposium
|
Equidad y Salud en Comunidades Diversas: Un Desafío Compartido
Facultad de Psicologia, Universidad de Sevilla, Spain
|
2009 - 2009 | Invited speaker - Cabo-verdianos e saúde mental na Holanda [Cape Verdean migrants in the Netherlands]
Conference
|
As múltiplas faces da migração cabo-verdiana
Alto Comissariado para a Imigração e Diálo Intercultural (ACIDI), Cape Verde
|
2007 - 2007 | Rapporteur - "Recommendations for the development of mental health services for migrants"
Conference
|
Health and Migration in the EU: Better health for all in an inclusive society
Ministério da Saúde, Portugal
|
2007 - 2007 | Invited speaker - O Movimento dos Usuários em saúde mental na Holanda [The mental health user movement in the Netherlands]
Seminar
|
A inserção dos usuários nos serviços de saúde mental
Secretaria Municipal de Saúde do Rio de Janeiro, Brazil
|
2006 - 2006 | Invited speaker - Migrant health in Portugal: Past. Present! Future?
Workshop
|
3rd IMISCOE Cluster B5 Workshop
Universidade de Lisboa Centro de Estudos Geográficos, Portugal
|
2003 - 2003 | Invited speaker - Migrants health situation in Portugal
Other
|
Work Session Immigrants living in extreme conditions
European Parliament - Comission on Immigration, Belgium
|
Jury of academic degree
Topic Role |
Candidate name (Type of degree) Institution / Organization |
|
---|---|---|
2024/12/17 | Preferences of rare diseases patients and informal caregivers for engagement in decisions about sharing health data for research
Supervisor
|
Ana Pinho (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2024/12/11 | Digital health: patient generated data and use of digital technologies
Supervisor
|
Yanni Caruso (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2024/11/28 | Saúde sexual e reprodutiva das populações imigrantes em Portugal: a perspetiva de profissionais de medicina e enfermagem
(Thesis) Main arguer
|
Bruno Duarte (Master)
Universidade Nova de Lisboa Instituto de Higiene e Medicina Tropical, Portugal
|
2024/11/25 | The impact of digital technologies on intimate partner violence - Probatory year examination
Supervisor
|
Diana Moreira (PhD)
Universidade do Porto Instituto de Ciências Biomédicas Abel Salazar, Portugal
|
2024/07/25 | Saúde global, migrações humanas e práticas de prevenção, promoção e educação em saúde na União Europeia - Pensar o direito
à saúde a partir de uma perspetiva decolonial - Prova de qualificação
Supervisor
|
Miguel Correia (PhD)
Universidade do Porto Faculdade de Psicologia e de Ciências da Educação, Portugal
|
2023/12/15 | Atitudes dos voluntários perante um doente mental ou um recluso: um estudo comparativo [Volunteers' attitudes towards people
with mental illness and inmates: a compartive study]
(Thesis) Main arguer
|
Lara Dá Mesquita (Master)
Universidade do Porto Instituto de Ciências Biomédicas Abel Salazar, Portugal
|
2022/03/29 | Public and patient involvement in decision-making about health data sharing, access, use, and reuse for rare diseases research
and care
Supervisor
|
Ngozi Nwebonyi (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2022/02/15 | Breastfeeding, industry marketing and migration in the era of globalization
Supervisor
|
Cosima Lisi (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
|
2021/11/05 | Developing a multi-level advocacy framework for Roma health at the local level
(Thesis) Main arguer
|
Daniela Miranda Rojas (PhD)
Facultad de Psicologia, Universidad de Sevilla, Spain
|
2021/10/22 | Quality of life of Syrian migrants living in Portugal
Supervisor
|
Walaa Kinaan (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2021/07/28 | A saúde armazenada. O biobanco na reconfiguração da saúde na sociedade contemporânea [Stored health. The biobank and the reconfiguration
of health in contemporary society]
(Thesis) Main arguer
|
Brígida Riso (PhD)
ISCTE-Instituto Universitário de Lisboa Escola de Sociologia e Políticas Públicas, Portugal
|
2020/12/16 | El desarrollo de la resiliencia en refugiados y migrantes a través de los factores de protección y riesgo: Importancia de
la intervención psicosocial [Resilience development among refugees and migrants through protecting and risk factors: the importance
of psychosocial intervention]
(Thesis) Main arguer
|
María Aguilar Serrano (Master)
Facultad de Psicologia, Universidad de Sevilla, Spain
|
2020/12/16 | Desarrollo sociopolítico de las trabajadoras del hogar migrantes en Sevilla: Experiencias vitales que impulsan su acción transformadora
[Sociopolitical development by migrant domestic workers in Seville: vital experiences that promote their transformative action]
(Thesis) Main arguer
|
Wendy Tatiana Duque Moreno (Master)
Facultad de Psicologia, Universidad de Sevilla, Spain
|
2020/12/16 | Intervenciones Sociales y Comunitarias Promotoras de la Inclusión Social de Personas Refugiadas y Solicitantes de Asilo en
Sociedades Receptoras: Una Revisión Sistemática [Social and community interventions to promote social inclusion by asylum
seekers and refugees in host societies: a systematic review]
(Thesis) Main arguer
|
Laura Cherino Brescia Máster (Master)
Universidad de Sevilla Facultad de Psicología, Spain
|
2020/07/15 | Multidimensional social exclusion and immigrants' health in Europe
(Thesis) Main arguer
|
Ana María Arias Uriona (PhD)
Universidade Nova de Lisboa Escola Nacional de Saúde Pública, Portugal
|
2019/11/14 | Involvement in maternal care by migrant women in Portugal
Supervisor
|
Janka Rebecca Massag (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2019/01/10 | People-centred policy for data governance in gamete donation: access to information by gamete donors and recipients
Supervisor
|
Tiago Maia (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2018/09/10 | Distributed health literacy among people living with chronic conditions
Thesis Member
|
Liliana Abreu (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
|
2017/12/06 | Enabling factors of the Community Health Worker Program in the Fiji Islands
Supervisor
|
Jyotishna Mudaliar (Master)
Universidade do Porto Faculdade de Medicina, Portugal
|
2017/03/24 | Participation of civil society in European Union (EU) decision-making and agenda-setting: the role of patient organisations
in EU health policy
(Thesis) Main arguer
|
Ana Lúcia Vitorino Cardoso (Master)
Instituto de Geografia e Ordenamento do Território, Portugal
|
Association member
Society Organization name | Role | |
---|---|---|
2023 - Current | European Society of Human Genetics | |
2021 - Current | Global Society on Migration, Ethicity, Race and Health | |
2016/04 - Current | CDG & Allies - Professionals and Patient Associations International Network | |
2014/02 - Current | Associação Portuguesa de Sociologia | |
2013/06 - Current | Rede Migra | |
2013 - Current | Coalition for the Study of Health, power and Diversity (CESPYD) | |
2012 - Current | European Sociological Association (ESA) | |
2006 - 2012 | Grupo Imigração e Saúde (GIS) | |
2005 - 2009 | IMISCOE - Network of Excellence on International Migration, Integration and Social Cohesion |
Committee member
Activity description Role |
Institution / Organization | |
---|---|---|
2023 - Current | Member of the Scientific Committee of the Erasmus+ Jean Monet Module "A digital Europe for citizens. Constitutional and policymaking challenges" | Universidade do Porto Faculdade de Direito, Portugal |
2015 - Current | ISPUP Scientific Committee | Universidade do Porto Instituto de Saúde Pública, Portugal |
2012 - 2017 | CIES-IUL Scientific Committee | Centro de Estudos e Investigação em Sociologia - Instituto Universitário de Lisboa (CIES-IUL), Portugal |
Course / Discipline taught
Academic session | Degree Subject (Type) | Institution / Organization | |
---|---|---|---|
2024 - Current | Políticas, sistemas e serviços de saúde [Health policies, systems and services] | Saúde Pública (Mestrado integrado) | Universidade do Porto Faculdade de Medicina, Portugal |
2024 - Current | Políticas e gestão de sistemas de saúde [Health systems policies and management] | Saúde Pública (Doutoramento) | Universidade do Porto Faculdade de Medicina, Portugal |
2024 - Current | Proteção de dados pessoais de saúde [Health data protection] | Educação para a Saúde (Mestrado integrado) | Universidade do Porto Faculdade de Medicina, Portugal |
2023 - Current | Ética em Epidemiologia e Saúde Pública [Ethics in Epidemiology and Public Health] | Saúde Pública (Mestrado integrado) | Universidade do Porto Faculdade de Medicina, Portugal |
2020 - Current | Ética e Filosofia da Ciência (Ethics and Filosophy of Science] | Saúde Pública (Doutoramento) | Universidade do Porto Faculdade de Medicina, Portugal |
2018 - Current | Métodos Avançados em Análise de Dados Qualitativos [Advanced Methods in Qualitative Data Analysis] | Saúde Pública (Doutoramento) | Universidade do Porto Faculdade de Medicina, Portugal |
2018 - Current | Métodos Qualitativos em Saúde [Qualitative Research Methods] | Saúde Pública (Mestrado integrado) | Universidade do Porto Faculdade de Medicina, Portugal |
2015 - Current | Sociologia da Saúde [Sociology of Health] | Curso de especialização em Saúde Pública [Specialization course in Public Health] (Especialização pós-licenciatura) (Outros) | Universidade do Porto Instituto de Saúde Pública, Portugal |
2014 - Current | Migraciones y diversidad en la Europa global: el papel de la salud y el bienestar social [Migration and diversity in global Europe: the role of health and well-being] | Master en Migraciones Internacionales, Salud y Bienestar [International Migration, Health and Well-being] (Outros) | Universidad de Sevilla Facultad de Psicología, Spain |
2017 - 2024 | Administração e Sistemas de Saúde [Health Systems Administration] | Saúde Pública (Doutoramento) | Universidade do Porto Faculdade de Medicina, Portugal |
2017 - 2024 | Administração e Políticas de Saúde [Health Policy and Administration] | Saúde Pública (Mestrado) | Universidade do Porto Faculdade de Medicina, Portugal |
2017 - 2019 | Intensive Course - Metodologias Mistas de Investigação em Saúde [Mixed Methods in Health Research] | Outra (Outros) | Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal |
2015 - 2015 | 2nd Intensive Course - Investigação Qualitativa em Saúde [Qualitative Health Research] | Outro (Outros) | Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal |
Evaluation committee
Activity description Role |
Institution / Organization | Funding entity | |
---|---|---|---|
2024 - 2024 | General Research Fund and Early Career Scheme - External Reviewer
Evaluator
|
University Grants Committee Research Grants Council, Hong Kong SAR China | University Grants Committee |
2023 - 2023 | European Research Council (ERC) Consolidator Grants - Deputy Chair
Vice-President
|
European Commission, Belgium | Horizon Europe programme |
2022 - 2022 | SONATA Funding Scheme - External reviewer
Evaluator
|
Narodowe Centrum Nauki, Poland | Narodowe Centrum Nauki |
2022 - 2022 | WHO Country Implementation Guide for Participatory Health Research with Migrants - Expert Reviewer
Evaluator
|
World Health Organisation - Regional Office for Europe, Switzerland | World Health Organisation - Regional Office for Europe |
2021 - 2022 | European Research Council (ERC) Consolidator Grants - Evaluation Panel Member
Evaluator
|
European Commission, Belgium | Horizon Europe programme |
2019 - 2019 | COST Open Call for Proposals OC-2018-2 - Independent External Expert
Evaluator
|
European Commission, Belgium | EU Framework Programme Horizon |
Journal scientific committee
Journal title (ISSN) | Publisher | |
---|---|---|
2020 - Current | Frontiers in Sociology - Medical Sociology (Associate Editor) | Frontiers Media SA |
2024 - 2024 | Scandinavian Journal of Caring Sciences (Peer review) | Wiley Online Library |
2024 - 2024 | Public Understanding of Science (Peer review) | Sage Publications |
2022 - 2024 | Health Expectations (Peer review) | Wiley-Blackwell Publishing Ltd |
2023 - 2023 | Health Promotion International (Peer Review) | Oxford Academic |
2021 - 2023 | Social Science and Medicine - Medical Sociology (Peer review) | Elsevier |
2021 - 2021 | International Journal of Health Policy and Management (Peer review) | Kerman University of Medical Sciences |
2019 - 2021 | Frontiers in Public Health - Inequalities in Health (Review Editor) | Frontiers Media SA |
2019 - 2021 | Social Science & Medicine - Health Psychology section (Peer Review) | Elsevier |
2017 - 2020 | Health Research Policy and Systems (Peer Review) | BioMed Central |
2019 - 2019 | Health Policy and Planning (Peer Review) | Oxford University Press |
2019 - 2019 | Science Technology and Society (Peer Review) | SAGE Publications |
2019 - 2019 | Social Theory and Health (Peer Review) | Palgrave |
2019 - 2019 | Health and Social Care in the Community (Peer review) | Wiley |
2018 - 2018 | Journal of Ethnic and Migration Studies (Peer Review) | Taylor & Francis Group |
2018 - 2018 | BMC Public Health (Peer Review) | BioMed Central |
2014 - 2018 | Revista Migrações (Peer Review) | Alto Comissariado para as Migrações |
2014 - 2018 | Qualitative Health Research (Peer Review) | Sage Publications |
2017 - 2017 | Interface – Comunicação, Saúde, Educação (Peer Review) | UNESP |
2016 - 2017 | Social Science & Medicine - Medical Anthropology Section (Peer Review) | Elsevier |
2015 - 2017 | Social Science & Medicine- Medical Sociology Section (Peer Review) | Elsevier |
2016 - 2016 | Journal of Disease and Global Health (Peer Review) | Publons |
2016 - 2016 | Globalization and Health (Peer Review) | BioMed Central |
2016 - 2016 | Public Health Panorama (Peer Review) | WHO/Europe |
2015 - 2015 | Social Science & Medicine - Medical Geography Section (Peer Review) | Elsevier |
2015 - 2015 | Global Journal of Community Psychology Practice (Peer Review) | Society for Community Research and Action |
2015 - 2015 | Health Expectations (Peer Review) | Wiley |
2014 - 2015 | Health Promotion International (Peer Review) | Oxford University Press |
2012 - 2014 | Psychosocial Intervention (Peer Review) | Elsevier |
2012 - 2012 | International Journal of Immigrant and Minority Health | Springer |
2011 - 2011 | Global Networks (Peer Review) | Wiley |
Mentoring / Tutoring
Topic | Student name | |
---|---|---|
2024 - 2024 | Visiting scholar, University of Seville Faculty of Psychology - Coalition for the Study of Health, Power and Diversity (CESPYD) | Daniela Miranda Rojas |
2023 - 2024 | Research Fellow, Project "Addressing mental health vulnerabilities from adolescence to older age: innovating prevention science for times of change (ADVANCE)" | Raquel Mara Teixeira |
2023 - 2023 | Visiting scholar, University of Seville - Coalition for the Study of Health, Power and Diversity (CESPYD) | Belén Soto Ponce |
2021 - 2021 | Visiting intern, Barcelona Institute for Global Health (ISGlobal), Project "Public and patient involvement in health data governance (DATAGov)" | Laura de la Torre |
2019 - 2021 | Research fellow, Project "Public and patient involvement in health data governance (DATAGov)" | Tiago Maia |
2019 - 2021 | Postdoc researcher, Project "Public and patient involvement in health data governance (DATAGov)" | Mariana Amorim |
2018 - 2018 | Research fellow, Project "Making asylum systems work in the EU" | Tiago Maia |
2016 - 2016 | Mobility fellow, COST Action IS1103 Short-term Scientific Mission "A community-based approach to Roma health mediation" | Marta Escobar Ballesta |
2015 - 2015 | Visiting scholar, University of Seville Faculty of Psychology | Virginia Paloma |
Other jury / evaluation
Activity description | Institution / Organization | |
---|---|---|
2024 - 2024 | Referee - Award Francisco Mercado, Iberoamerican award for the best PhD thesis in qualitative health research | Congresso Ibero-Americano de Investigação Qualitativa em Saúde, Brazil |
2022 - 2022 | Referee - Award Francisco Mercado, Iberoamerican award for the best PhD thesis in qualitative health research | Congresso Ibero-Americano de Investigação Qualitativa em Saúde, Brazil |
Distinctions
Award
2024 | Best Oral Communication in the Health Sciences at the 17th Young Researchers Meeting of the University of Porto (supervisor
of Ana Pinho)
Universidade do Porto, Portugal
|
2019 | ISCTE-IUL Scientific Award
ISCTE-Instituto Universitário de Lisboa, Portugal
|
2018 | International Conference on Breastfeeding / Conferência Internacional de Aleitamento Materno - Best Poster Award
Comissão Nacional Iniciativa Hospitais Amigos dos Bebés / UNICEF, Portugal
|
2018 | ISCTE-IUL Scientific Award
ISCTE-Instituto Universitário de Lisboa, Portugal
|
2017 | ISCTE-IUL Scientific Award
ISCTE-Instituto Universitário de Lisboa, Portugal
|
2016 | ISCTE-IUL Scientific Award
ISCTE-Instituto Universitário de Lisboa, Portugal
|
2016 | 6th European Conference on Migrant and Ethnic Minority Health of the European Public Health Association - Best Poster Prize
Norwegian Medical Association, Portugal
|
Other distinction
2023 | EPIUnit Scientific Missions Grant
Universidade do Porto Instituto de Saúde Pública, Portugal
|
2016 | Postdoc Research Fellowship
Fundação para a Ciência e a Tecnologia, Portugal
|
2015 | Short-term Scientific Mission Grant
COST Action IS1103, EU Framework Programme 2020, Portugal
|
2012 | Postdoc Research Fellowship
Fundação para a Ciência e a Tecnologia, Portugal
|
2009 | Short-term Scientific Mission Grant
COST Action IS0603 (HOME), EU 7th Framework Programme, Portugal
|
2008 | MA thesis selected as "one of the most remarkable theses written in ISHSS history", promoted by International School of Humanities
and Social Sciences, University of Amsterdam
International School of Humanities and Social Sciences, University of Amsterdam, Portugal
|
2004 | PhD Grant
Fundação para a Ciência e a Tecnologia, Portugal
|
1999 | Socrates-Erasmus Student Mobility Grant
European Comission, Portugal
|