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Brígida Riso is a health sociologist and researcher. Her research interests are mainly biobanks, biomedical research, health in datified societies, and artificial intelligence. She has developed an original research on the relevance of biobanks in health configuration in the contemporary Portuguese society. Her approach usually combines sociology of health and illness and social studies of science, looking into ethics and research integrity. She has been an advocate and a trainer in research integrity and open science. Brígida holds a PhD in Sociology by Iscte-IUL, a MSc. in Health, Medicine & Society (Sociology of Health and Illness) and a degree in Nursing. Currently she is assistant professor (invited) at Lisbon School of Medicine.
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Identification

Personal identification

Full name
Brígida Riso

Citation names

  • Riso, Brígida

Author identifiers

Ciência ID
EE12-4539-BE7E
ORCID iD
0000-0001-5928-8895
Google Scholar ID
7XSoldYAAAAJ
Researcher Id
rid43409
Scopus Author Id
57195419603

Email addresses

  • baamr@iscte-iul.pt (Professional)
  • brigida.riso@medicina.ulisboa.pt (Professional)

Addresses

  • CIES-IUL. Avenida das Forças Armadas, 1649-026 , Lisboa, Lisboa, Portugal (Professional)
  • Faculdade de Medicina da Universidade de Lisboa, Avenida Professor Egas Moniz, 1649-028, Lisboa, Lisboa, Portugal (Professional)

Websites

  • https://ciencia.iscte-iul.pt/authors/brigida-riso/cv (Scholar)

Knowledge fields

  • Medical and Health Sciences - Health Sciences
  • Medical and Health Sciences - Medical Biotechnology - Medical Biotechnology Related Ethics
  • Social Sciences - Sociology
  • Social Sciences - Sociology - Sociology
  • Social Sciences
  • Medical and Health Sciences - Health Sciences - Medical Ethics

Languages

Language Speaking Reading Writing Listening Peer-review
Portuguese (Mother tongue)
English Advanced (C1) Proficiency (C2) Advanced (C1) Proficiency (C2) Advanced (C1)
Spanish; Castilian Elementary (A2) Advanced (C1) Beginner (A1) Upper intermediate (B2)
Education
Degree Classification
2022/12/05 - 2022/12/09
Concluded
 2nd Open Science Train the Trainer Bootcamp (Outros)
Major in Open Science
OpenAire , Belgium
2022/02 - 2022/04
Concluded
 VIRT2UE Train the Trainer (Postgraduate Certificate)
Major in Research Integrity
Amsterdam UMC Locatie VUmc, Netherlands
2021/07/28
Concluded
 Sociology [Doctoral degree] (Doutoramento)
ISCTE-Instituto Universitário de Lisboa, Portugal
"A Saúde Armazenada: O Biobanco na reconfiguração da saúde na sociedade contemporânea. [The Stored Health: The Biobank in the reconfiguration of health in the contemporary Society]" (THESIS/DISSERTATION)
 Aprovada com Distinção
2015 - 2016
Concluded
 Data Analysis for Social Sciences [Post-graduation course] (Pós-Graduação)
ISCTE-Instituto Universitário de Lisboa, Portugal
 17
2012 - 2012
Concluded
 Pedagogical Skills Certification (Outros)
Instituto do Emprego e Formação Profissional, Portugal
 Aprovado
2008 - 2012
Concluded
 Health, Medicine and Society [Master Degree] (Mestrado)
ISCTE-Instituto Universitário de Lisboa, Portugal
"Discursive Logics on Health and School: an analysis of the Portuguese school health policy" (THESIS/DISSERTATION)
 17 valores
2003 - 2007
Concluded
 Nursing [Licenciate degree] (Licenciatura)
Escola Superior de Enfermagem de Lisboa Pólo Calouste Gulbenkian, Portugal
"Toque de entrada - Operacionalização do conceito escola promotora de saúde" (THESIS/DISSERTATION)
 17 valores
Affiliation

Science

Category
Host institution 		Employer
2022/01/01 - Current Researcher (Research) Universidade de Lisboa Instituto de Saúde Ambiental, Portugal
Universidade de Lisboa Faculdade de Medicina, Portugal
2012 - Current Researcher (Research) ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal

Teaching in Higher Education

Category
Host institution 		Employer
2022/07 - Current Invited Assistant Professor (University Teacher) Universidade de Lisboa Faculdade de Medicina, Portugal
2021/03 - 2022/06 Invited Assistant (University Teacher) Universidade de Lisboa Faculdade de Medicina, Portugal
Universidade de Lisboa Faculdade de Medicina, Portugal

Others

Category
Host institution 		Employer
2015/05/01 - 2020/09/11 PhD Fellow ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal
ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal
2007/08 - 2015/04 Nurse Hospital dos SAMS, Portugal
2012/10 - 2013/07 Trainer/Teacher Seminfor - Escola Profissional de Penafirme, Portugal
Projects

Grant

Designation Funders
2023/01/01 - Current Blockchain.pt
C644918095-00000033
Researcher
ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal
 European Union
Ongoing
2015/05/01 - 2020/09/11 Biobanks and human bio-objects: social dynamics in the Portuguese health context
SFRH/BD/100779/2014
PhD Student Fellow
ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal
 Fundação para a Ciência e a Tecnologia
Concluded
2016/02 - 2016/02 Visiting Research Fellow - "Sharing sensitive data through biobanks" - Københavns Universitet
COST Action IS 1303
Researcher
Københavns Universitet Institut for Folkesundhedsvidenskab, Denmark
 European Cooperation in Science and Technology
Concluded

Contract

Designation Funders
2021/03/08 - Current iSTARS - Informatics and Statistical Tools for the Advancement of Research Success
952377
Project Manager
Universidade de Lisboa Faculdade de Medicina, Portugal
Ongoing

Other

Designation Funders
2022/12 - 2026/10 3Rs concepts to improve the quality of biomedical science (IMPROVE)
COST Action 21139
Researcher
Ongoing
2016 - 2020 Citizen Science
COST ACTION CA 15212
Researcher
European Cooperation in Science and Technology, Belgium
 European Cooperation in Science and Technology
Concluded
2019/03/01 - 2019/03/31 Visiting Research Fellow - Stor(y)ing health: An ethnography through Portuguese biobanks and health contexts
SFRH/BD/100799/2014
Researcher
Fondation Brocher, Switzerland
 Fondation Brocher

Fundação para a Ciência e a Tecnologia
Concluded
2013 - 2017 Citizen's Health through public-private Initiatives: Public health, Market and Ethical perspectives (CHIP ME)
COST ACTION IS1303
Researcher
European Cooperation in Science and Technology, Belgium
 European Cooperation in Science and Technology
Concluded
Outputs

Publications

Book
  1. Riso, Brígida. Os Biobancos na investigação biomédica: desafios para a saúde na sociedade contemporânea. Portugal: Lisbon International Press. 2024.
    Published
Book chapter
  1. Riso, Brígida. "Os Biobancos na Investigação em Saúde Ambiental [Biobanks in research in environmental health]". In Saúde Ambiental: Cadernos de Notas Soltas III [Environmental health: Notebooks III], edited by Santos, Osvaldo; Abreu, Ana; Santos, Ricardo R., 157-161. Lisboa, Portugal: AEFML; ISAMB, 2023.
    Published
  2. Riso, Brígida; Águas, Cíntia. "Digital informed consent: possibilities and challenges in biobanks for health research". In Cadernos de Saúde Societal - Transformação Digital e Inclusão na Saúde, edited by Martins, Henrique Manuel Gil; Camilo, Cristina; Souza, Cristiane; Cardoso, Elsa; Bobrowicz-Campos, Elzbieta; Ferreira, Jorge; Lima, Maria Luisa ; Viegas, Ricardo; Leite, Francisca, 53-61. Iscte-IUL, 2022.
    Published
  3. Riso, Brígida. "Os Portugueses e os Biobancos: um primeiro mapeamento de uma realidade emergente [Biobanks and the Portuguese: a first map of an emerging phenomena]". In Biobancos, investigação e saúde pública: promessas e desafios, edited by Silva, José Pedro; Barros, Henrique. Porto, Portugal: ISPUP, 2020.
    Published
  4. Riso, Brígida. "Biobancos de pesquisa clínica: uma questão de cidadania (biológica) [Biobanks for clinical research: a question of (biological) citizenship]". In Cidadania e Genética [Citizenship and Genetics], edited by Helena Machado, 171-189. Porto, Portugal: Afrontamento, 2017.
    Published
Book review
  1. Riso, Brígida. "Tupasela Aaro (2021) Populations as brands - Marketing national resources for global data markets. Cham: Palgrave Macmillan. 225 pp. ISBN: 9783030785789 (eBook)". Review of Populations as brands – Marketing national resources for global data markets 36, 1 (2023):
    Published • https://doi.org/10.23987/sts.120626
Conference abstract
  1. Riso, Brígida. "Good citizens: citizens' participation in biomedical research biobanks". Paper presented in The Futures We Want: Global Sociology and the Struggles for a Better World, Vienna, 2016.
    Published
  2. Riso, Brígida. "Before pharma: transforming samples into bio-objects in biobanks". Paper presented in The Futures We Want: Global Sociology and the Struggles for a Better World, Vienna, 2016.
    Published
  3. Riso, Brígida. "Biobancos em Portugal: entre a Saúde e a Ciência [Biobanks in Portugal: between Health and Science]". Paper presented in 2a Conferência Rumos da Sociologia do Conhecimento, Ciência e Tecnologia em Portugal, Lisboa, 2015.
    Published
  4. Riso, Brígida; Santos, Mário JDS; Pereira, Odete Matos. "Reflecting the local practice of health promoting schools". Paper presented in 12th World Congress on Public Health, Istanbul, 2009.
    Published
  5. Riso, Brígida; Santos, Mário J. D. S.; Pereira, Odete Matos. ""We want to promote health" - The implementation path of health promoting school concept". Paper presented in Better Schools through health: The third european conference on health promoting schools, Vilnius, 2009.
    Published
Conference poster
  1. Riso, Brígida. "Dos biobancos às coleções osteológicas: promover a produção responsável de recursos de investigação em saúde [From biobanks to osteological collections: promoting responsible production of resources for health research]". Paper presented in Encontro da Primavera, 2023.
  2. Riso, Brígida. "The Portuguese Network of Biobanks: a case study". Paper presented in Global Biobank Week, 2017.
  3. Riso, Brígida; Santos, Mário JDS. "Profiles of the Portuguese: an analysis of public perceptions towards biobanks". Paper presented in Global Biobank Week, 2017.
  4. Riso, Brígida. "Biobanks in changing health contexts: a sociological perspective". Paper presented in Health, Genomics and Ethics: Current research, controversies and public policy-making, 2015.
  5. Riso, Brígida. "A política portuguesa de saúde escolar: velhas questões ou novas configurações? [The Portuguese School Health Policy: old questions or new configurations?]". Paper presented in VIII Congresso Português de Sociologia, 2014.
  6. Riso, Brígida; Santos, Mário JDS. "Toque de entrada - Construindo uma escola promotora de saúde [Setting up a health promoting school]". Paper presented in I Congresso Nacional de Saúde Pública, 2008.
Journal article
  1. Lauwereyns, Jan; Bajramovic, Jeffrey; Bert, Bettina; Camenzind, Samuel; De Kock, Joery; Elezovic, Alisa; Erden, Sevilay; et al. Corresponding author: Ahluwalia, Arti. "Toward a common interpretation of the 3Rs principles in animal research". Lab Animal 53 12 (2024): 347-350. https://doi.org/10.1038/s41684-024-01476-2.
    10.1038/s41684-024-01476-2
  2. Riso, Brígida; Santos, Mário JDS; Ávila, Patrícia. Corresponding author: Riso, Brígida. "Portuguese and the biobanks: profiles and attitudes of the Portuguese Population towards biobanks for health research". Portuguese Journal of Social Sciences (2023):
    Accepted
  3. Riso, Brígida. ""Not storing the Samples It's Certainly Not a Good Service for Patients": Constructing the Biobank as a Health Place". Societies 12 4 (2022): 113. http://dx.doi.org/10.3390/soc12040113.
    Open access • 10.3390/soc12040113
  4. Riso, Brígida; Tupasela, Aaro; Vears, Danya F.; Felzmann, Heike; Cockbain, Julian; Loi, Michele; Kongsholm, Nana C. H.; Zullo, Silvia; Rakic, Vojin. "Ethical sharing of health data in online platforms - which values should be considered?". Life Sciences, Society and Policy 13 1 (2017): http://dx.doi.org/10.1186/s40504-017-0060-z.
    Open access • 10.1186/s40504-017-0060-z
  5. Borry, Pascal; Bentzen, Heidi Beate; Budin-Ljøsne, Isabelle; Cornel, Martina C.; Howard, Heidi Carmen; Feeney, Oliver; Jackson, Leigh; et al. "The challenges of the expanded availability of genomic information: an agenda-setting paper". Journal of Community Genetics 00 (2017): 00-00.
    Published • 10.1007/s12687-017-0331-7
  6. Feeney, Oliver; Borry, Pascal; Felzmann, Heike; Galvagni, Lucia; Haukkala, Ari; Loi, Michele; Nordal, Salvör; et al. "Genuine participation in participant-centred research initiatives: the rhetoric and the potential reality". Journal of Community Genetics 00 (2017): 00-00.
    Published • 10.1007/s12687-017-0342-4
  7. Riso, Brígida. "A construção da escola como lugar de saúde: Contributo para uma reflexão sobre as políticas de saúde escolar na sociedade portuguesa contemporânea [The School as a health place: a reflection of school health policy in the contemporary Portuguese society]". Educação, Sociedade e Culturas. Health Education: perspectives and intervention contexts 38 (2013): 77-95. http://www.fpce.up.pt/ciie/sites/default/files/06.BrigidaRiso.pdf.
    Published
Preprint
  1. Riso, Brigida. "“O corpo é uma fonte de amostras”: Uma análise da conceptualização do corpo como objeto médico-científico na legislação portuguesa sobre biobancos". 2024. http://dx.doi.org/10.1590/scielopreprints.9572.
    10.1590/scielopreprints.9572
Thesis / Dissertation
  1. "A Saúde Armazenada: O biobanco na reconfiguração da saúde na sociedade contemporânea [The stored health: The biobank in health reconfiguration in contemporary society]". PhD, ISCTE-Instituto Universitário de Lisboa, 2021.
  2. Riso, Brígida Alexandra Amaral Mendes. "Lógicas discursivas sobre a saúde e a escola: a política portuguesa de saúde escolar em análise [Discourses on health and school: an analysis of the Portuguese School Health policy]". Master, 2012. http://hdl.handle.net/10071/5909.
  3. Riso, Brígida. "Toque de Entrada - Operacionalização do conceito de Escola Promotora de Saúde na perspectiva dos intervenientes [Health Promoting Schools concept: actors' perspectives]". Degree, Escola Superior de Enfermagem de Lisboa Pólo Calouste Gulbenkian, 2007.
Working paper
  1. Riso, Brígida. 2016. "O estatuto social do biobanco de pesquisa clínica [The social status of clinical research biobank]". http://hdl.handle.net/10071/11078.
Activities

Oral presentation

Presentation title Event name
Host (Event location)
2024/09 Biobanks are for sharing: power-knowledge relationships mediated by biological and clinical data Data Power 2024: Situating Data Practices Beyond Data Universalism
University of Graz and University of Bangalore (Bangalore and Graz (Austria), India)
2024/08 Saving lives: transforming human biological samples through caring practices in a biobank 16th Conference of the European Sociological Association: Tension, Trust and Transformation
(Porto, Portugal)
2024/04/05 Data management in research databases: social dynamics and ethical considerations based on a practical case of biobanks Caring for heritage and memory:Challenges in data management and curation in the social sciences and humanities
Universidade do Minho and InToPast (Braga, Portugal)
2024 Questões Pedagógicas na... Ética na Inteligência Artificial Flash Ped Talks
Escola Superior de Tecnologias da Saúde de Lisboa (Lisboa, Portugal)
2023/09/27 Journal Club - "Not storing samples it's certainly not a good service for patients": Constructing the Biobank as a health place Journal Club IMPSP
IMP&SP (Lisboa)
2023/06/21 Pensar as coleções osteológicas humanas documentadas como biobancos: uma proposta de boas práticas de conservação [Identified human osteological collections as biobanks: a proposal of best practices of conservation] Data Talk
Grupo de Trabalho do Fórum GDI Formação e Competências para a Gestão de Dados FAIR (Portugal)
2023/03/24 Gender in (bio)medical research: notes from a research study in a biobank Gender Mainstreaming in Medicine and Medical Research
Faculdade de Medicina Universidade de Lisboa (Lisboa, Portugal)
2023 O biobanco é para partilhar: Da organização de estratégias de saber-poder sobre o corpo e a saúde no contexto da investigação biomédica [The biobank is for sharing: power-knowledge strategies on health and the body in the context of biomedical research] XI Congresso Português de Sociologia
Universidade de Coimbra (Coimbra, Portugal)
2022/09/08 O repertório profissional na produção de dados etnográficos: o caso de uma pesquisa num biobanco para a investigação em saúde [The professional repertoire in the production of ethnographic data: a research-case in a biobank] 8º Congresso da Associação Portuguesa de Antropologia
Universidade de Évora (Évora, Portugal)
2022/09 Just like biobanks? A new approach to human osteological collections EAA Annual Meeting
European Association of Archaeology (Budapest, Hungary)
2022/08 Documented Human Osteological Collections as Biobanks (?): Relevance for rare diseases identification in the past 23rd Paleopathology Association European Meeting
Paleopathology Association (Vilnius, Lithuania)
2022/06/09 Collecting bioinformation for the future: an ethnography in a biobank for biomedical research Anthropology, AI and the Future of Human Society
Royal Anthropology Association (United Kingdom)
2022/06/07 A saúde armazenada - O biobanco na reconfiguração da saúde na sociedade contemporânea 4 escolas 4 teses
Iscte Saúde (Lisboa, Portugal)
2022/03/12 A Saúde Armazenada: A dimensão social da construção do conhecimento médico-científico através dos biobancos [The social dimension of the construction of medical knowledge through biobanks] Arruda Tem Valor
Câmara Municipal de Arruda dos Vinhos (Arruda dos Vinhos, Portugal)
2022 Gestão de informação em Biobancos: problemas e constrangimentos na recolha de informação de qualidade [Data management in Biobanks: problems in data collection] 9º Fórum GDI
Universidade de Évora (Évora, Portugal)
2021/05/06 Património Cultural, Biobancos ou ambos? Repensar as coleções osteológicas humanas [Cultural heritage, biobanks or both?: Rethinking human osteological collections] Sociedade Portuguesa de Antropologia e Etnologia
SPAE - Sociedade Portuguesa de Antropologia e Etnologia (Online, Portugal)
2020/06/22 "Pode começar amanhã": singularidades de uma pesquisa etnográfica num Biobanco ["You can start tomorrow: singularities of an ethnographic research in a Biobank"] Etnografia em serviços de saúde: passado, presente e futuro
ETHICHO - CICS.NOVA
2019/06 Construindo a saúde e a doença: os itinerários das amostras biológicas humanas na pesquisa biomédica contemporânea [Constructing health and illness: itineraries of human biological samples in contemporary health research] VII Congresso da APA
Associação Portuguesa de Antropologia (Lisboa, Portugal)
2019/03 Stor(y)ing health: an ethnography through Portuguese biobanks and health contexts Visiting Scholars Conference
Fondation Brocher (Hermance, Geneve, Switzerland)
2018/10 Os biobancos existem? Notas metodológicas de uma pesquisa de terreno na fronteira da saúde e da ciência [Do biobanks exist?: reflection on methodological issues of fieldwork between Health and Science] Desafios da Investigação CIES-IUL
CIES-IUL (Lisboa, Portugal)
2018/07 Ao encontro da humanidade: dinâmicas de construção identitária de amostras biológicas num biobanco [Encountering humanity: the constructions of the identity of biological samples in a biobank] X Congresso Português de Sociologia
Associação Portuguesa de Sociologia (Covilhã, Portugal)
2018/06 Bringing humanity back in: constructing identities of human biological samples in a health related biobank PhD Workshop 17th Biennial ESHMS Conference 2018
European Society of Health and Medical Sociology (Lisboa, Portugal)
2018/02 Os Portugueses e os Biobancos: um primeiro mapeamento de uma realidade emergente [Biobanks and the Portuguese: a first map of an emerging phenomena] Biobancos, Investigação e Saúde Pública: promessas e desafios
ISPUP (Porto, Portugal)
2017/09 Ethical sharing of health data: which values should be considered? CHIP ME Final Conference
COST Action CHIP ME IS 1303 (Galway , Ireland)
2017/08 Giving a meaning to health through biobanks 13th Conference of the European Sociological Association (Un)Making Europe: Capitalism, Solidarities, Subjectivities
European Sociological Association (Atenas, Greece)
2017/07 Participant centred research initiatives: is there 2.0 genuine participation? Democracy and Participation in the 21st century
International Sociological Association (ISA) Research Committee 10 (RC10) (Lisboa, Portugal)
2017/07 Archiving health and illness: conceptualisation of the body in a Portuguese biobank Bodies in transition - Power, Knowledge and Medical Anthropology
EASA Medical Anthropology Network (Lisboa, Portugal)
2016/05 A construção do biobanco como lugar de saúde: resultados preliminares [Constructing the biobank as a health place: preliminary results] III Colóquio Doutoral da Escola de Sociologia e Políticas Públicas
Escola de Sociologia e Políticas Públicas - ISCTE-IUL (Lisboa, Portugal)
2015/10 Enhancing health through genetics: from biobanks to the politics of life Enhancing understanding of enhancement
The Hastings Center & Center for the Study of Bioethics (Belgrado, Serbia)
2015/08 Biobanks and human bio-objects: challenges in the healthcare sector Differences, Inequalities and Sociological Imagination: Differences, Inequalities and Sociological Imagination
European Sociological Association (Praga, Czech Republic)
2013/11 Problems and limits of the use of scientific knowledge as a strategy for professional autonomy – a reflection about nursing science in Portugal ISA RC52 "Professional Groups" Interim Conference: Challenging Professionalism: New directions in policies, publics and the professions
International Sociology Association RC 52 (Lisboa, Portugal)
2013/08 Learning skills for healthy bodies and healthy lives: the school health policies trough political discourse ESA 11th conference: crisis, critique and change
European Sociological Association (Torino, Italy)

Supervision

Thesis Title
Role 		Degree Subject (Type)
Institution / Organization
2023 - 2025 A perceção dos profissionais sobre o conforto do doente em cuidados paliativos [Perceptions of "comfort" in the context of palliative care]
Co-supervisor
 Cuidados Paliativos (Master)
Universidade de Lisboa Faculdade de Medicina, Portugal
2023/09 - 2024/07 AI and medicine - challenges for clinical practice
Supervisor
 Medicina (Master)
Universidade de Lisboa Faculdade de Medicina, Portugal
2021/09 - 2023/07 The perspective of the patients with eating disorders on their access to healthcare
Co-supervisor
 Medicina (Master)
Universidade de Lisboa Faculdade de Medicina, Portugal
2022/09 - 2023/06 The experience of informal carers of patients with amyotrophic lateral sclerosis
Supervisor
 Medicina (Master)
Universidade de Lisboa Faculdade de Medicina, Portugal
2022/09 - 2023/06 Digital informed consent for biobanks: challenges for medical practice
Supervisor
 Medicina (Master)
Universidade de Lisboa Faculdade de Medicina, Portugal

Event organisation

Event name
Type of event (Role) 		Institution / Organization
2023/03/24 - Current Gender Mainstreaming in Medicine and Medical Research (2023/03/24 - 2023/03/24)
Conference (Co-organisor)
 Universidade de Lisboa Faculdade de Medicina, Portugal
2022/05/23 - 2023/05/23 30 anos de "Saberes e Poderes no Hospital" - Diálogos e Debates [30 years of "Saberes e Poderes no Hospital": dialogues and debates] (2023/05/23)
Meeting (President of the Organising Committee)
 ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal
2019/10/24 - 2019/10/25 2º Encontro Nacional de Ciência Cidadã (2019/10/24)
Conference (Member of the Organising Committee)
2018/03/19 - 2018/03/19 Desenvolvimento e implementação de estratégias e políticas de ciência cidadã: uma comparação pan-europeia [Development and implementation strategies and policies of citizen science: a pan-european comparison] (2018/03/19)
Workshop (President of the Organising Committee)
2018 - 2018 A pan-european comparison of the development and implementation of Citizen Science policies and Strategies (2018/03 - 2018/03)
Meeting (Co-organisor)
 COST Action, Portugal
2017/09/04 - 2017/09/06 Conferência Final CHIP ME [CHIP ME final conference] (2017/09/04)
Conference (Member of the Organising Committee)
2017 - 2017 Making the cut? Scientific possibilities and ELSI challenges in gene-editing (2017/03 - 2017/03)
Seminar (Member of the Organising Committee)
 COST IS 1303 - CHIP ME, Italy
2017 - 2017 CHIP ME Final Conference (2017/09 - 2017/09)
Conference (Member of the Organising Committee)
 COST Action, Ireland
2016/01/01 - 2016/12/31 ESA RN 16 Mid-Term Conference "New directions in health care work and organisations" (2016/01/01)
Other (Member of the Organising Committee)
2016/01/01 - 2016/12/31 Who has a right to my genome? ELSI challenges of citizen participation and public-private partnerships in genomic science (2016/01/01)
Conference (Member of the Organising Committee)
2016 - 2016 CHIP ME Working Group 3 Meeting (2016/12 - 2016/12)
Meeting (Co-organisor)
 COST Action IS 1303 - CHIP ME, Portugal

Event participation

Activity description
Type of event 		Event name
Institution / Organization
2022/05/21 - 2022/05/21 Erro Médico [Medical error and medical negligence] - em representação da Associação Portuguesa de Sociologia [representing Portuguese Sociological Association]
Conference
 Congresso da Saúde
Associação para a Promoção da Literacia em Saúde, Portugal
2018/07 - 2018/07 Dinamização da sessão "Etnografia" ao longo de um dia no âmbito da "Ocupação Científica dos Jovens nas Férias". [Science Outreach Workshop - "Ethnography" - Science at Holidays for Teens]
Other
 Ocupação Científica dos Jovens nas Férias
ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal

Ciência Viva, Portugal
2015/11/24 - 2015/11/24 Semana da Ciência e Tecnologia. Dinamização da sessão "À conversa em contextos de saúde". [Science outreach activity in Science and Technology Week - Workshop "Interviewing in health settings"]
Workshop
 Semana da Ciência e Tecnologia [Science and Technology week]
ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal

Ciência Viva, Portugal
2015/11/02 - 2015/11/06 Training School and Symposium - Biobanks and Big Data: Possibilities and Challenges
Other
 Biobanks and Big Data: Possibilities and Challenges
Lunds Universitet, Sweden

Københavns Universitet Institut for Folkesundhedsvidenskab, Denmark

BBMRI.se, Sweden
2015/09 - 2015/09 Training School - Health, Genomics and Ethics: Current research, controversies and public policy-making
Other
 Health, Genomics and Ethics: Current research, controversies and public policy-making
COST Action IS 1303 - CHIP ME, Portugal
2015/07 - 2015/07 Dinamização da sessão "Focus Group" ao longo de um dia. Acompanhamento dos jovens na concepção e desenvolvimento de um projecto de pesquisa ao longo de uma semana no âmbito da "Ocupação Científica dos Jovens nas Férias". [session "Focus group". Mentoring secondary school students in the conception of a Social Sciences research project in the programme - Scientific holidays for teens]
Other
 Ocupação Científica dos Jovens nas Férias
ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal

Ciência Viva, Portugal

Jury of academic degree

Topic
Role 		Candidate name (Type of degree)
Institution / Organization
2023/07 Report of the internship at the IBIMED Biobank
(Thesis) Main arguer
 Edite Patrícia de Jesus Raj Ravella (Master)
Universidade de Aveiro, Portugal
2023/06/28 Literacia em saúde nos estudantes do 1.º ano do curso de Medicina e relação com a sua saúde cardiovascular [Health literacy in 1st year medical students and its relation with their cardiovascular health]
(Thesis) Main arguer
 Marta Marques Jardim (Master)
Universidade de Lisboa Faculdade de Medicina, Portugal
2023/05/08 O consentimento em biobancos para fins de investigação biomédica [Consent in biobanks for biomedical research]
(Thesis) Arguer
 Cíntia Águas (PhD)
Universidade Católica Portuguesa, Portugal

Ad Hoc journal article review

Journal title (ISSN) Publisher
2023 - Current Science and Technology Studies (2243-4690)
2022 - Current Sociologia OnLine (1647-3337) Associação Portuguesa de Sociologia
2022 - Current Frontiers in Public Health Frontiers
2024 - 2024 Big Data and Society Sage
2023 - 2023 Frontiers in Artificial Intelligence (2624-8212) Frontiers
2021 - 2021 Bioethics (1467-8519) Wiley
2020/06 - 2020/10 Saúde e Sociedade (0104-1290) SciELO
2020/06 - 2020/07 Interface - Comunicação Saúde Educação (1414-3283) SciELO

Association member

Society Organization name Role
2024/02 - Current Open Science Community Lisbon
2023/06/01 - Current Co-coordinator of Sociology of Health division Associação Portuguesa de Sociologia [Portuguese Sociological Association] Co-coordinator of Health Sociology Section
2018/03 - Current European Society for Health and Medical Sociology Member
2014/01 - Current European Sociological Association Member
2012/07 - Current Associação Portuguesa de Sociologia [Portuguese Sociological Association] Member of Sociology of Health section
2007/08 - 2015/04 Ordem dos Enfermeiros Member

Committee member

Activity description
Role 		Institution / Organization
2022/12/21 - Current ESTeSL - Ethics Committee
Member
 Instituto Politécnico de Lisboa Escola Superior de Tecnologia da Saúde de Lisboa, Portugal

Conference scientific committee

Conference name Conference host
2021 - 2021 2º Encontro Nacional de Ciência Cidadã [II Citizen Science National Meeting]
2019/10 - 2019/10 1º Encontro Nacional de Ciência Cidadã [I Citizen Science National Meeting] Lisboa
2015/08 - 2016/05 ESA RN 16 Mid-Term Conference "New directions in health care work and organisations" Lisboa

Consulting

Activity description Institution / Organization
2021/10 - 2024/03 European Open Science Cloud (EOSC) Future User Group Member European Commission, Belgium
2023 - 2023 Genomic medicine in Portugal: Ethical, legal and social issues NTT Data Business Solutions AG, Germany
2016/12/16 - 2016/12/16 Project - Genetic Clinics of the Future Fundação da Faculdade de Ciências da Universidade de Lisboa, Portugal

Course / Discipline taught

Academic session Degree Subject (Type) Institution / Organization
2024/01 - Current Seminar: Biobanks and Data Management: problems, questions and some solutions from a socio-ethical perspective Bioinformática na Gestão de Dados Clínicos (Pós-Graduação) Universidade de Coimbra Faculdade de Medicina, Portugal
2023/09/18 - Current Investigação qualitativa em saúde [Qualitative Health Research] Medicina (Mestrado integrado) Universidade de Lisboa Faculdade de Medicina, Portugal
2023/09/13 - Current Biobancos: Potenciar a investigação em saúde [Biobanks: powering health research] (Pós-Graduação) Universidade de Lisboa Faculdade de Medicina, Portugal
2023/05/19 - Current Aula: Biobancos em Portugal - desafios sociais [Lecture: Biobanks in Portugal: social challenges] Mestrado em Gestão da Investigação Clínica (Mestrado) Universidade Nova de Lisboa Nova Medical School, Portugal

Universidade de Aveiro, Portugal
2022/05/12 - 2024/05/13 Aula: Biobancos: o ponto de vista dos investigadores. [Lecture: Biobanks - the researchers' perspective] Aspetos éticos e sociais em genética clínica e laboratorial (Outros) Universidade de Coimbra Faculdade de Medicina, Portugal
2023/12 - 2024/01 Curso de Formação Avançada em Biobancos [Advanced training in Biobanking] (Postgraduate Certificate) Fundação Calouste Gulbenkian, Portugal

Universidade de Lisboa Instituto de Medicina Molecular João Lobo Antunes, Portugal
2023/02 - 2023/06 Analise qualitativa de dados: Introdução ao MaxQDA [Qualitative Data Analysis: introduction to MaxQDA] Análise de Dados em Saúde (Pós-Graduação) Instituto Politécnico de Coimbra Escola Superior de Tecnologia da Saúde de Coimbra, Portugal
2023/01/03 - 2023/01/03 Aula: Pensar as coleções osteológicas a partir dos biobancos [Lecture: Thinking about osteological collections from biobanking perspective] Contextos de Estudo de Osteologia Humana (Licenciatura) Universidade Nova de Lisboa Faculdade de Ciências Sociais e Humanas, Portugal
2023/01 - 2023/01 Integridade na Investigação em Saúde [Research Integrity in Health Settings] Research Integrity (Outros) Universidade de Lisboa Faculdade de Medicina, Portugal
2022/10 - 2022/10 Aula: Pensar a saúde na sociedade contemporânea: um exemplo de uma pesquisa num biobanco [Lecture: Reflecting about health in the contemporary society: an example of a research in a biobank] Sociologia (Licenciatura) Universidade Nova de Lisboa Faculdade de Ciências Sociais e Humanas, Portugal
2019/11 - 2019/11 Aula: Biobancos e bio-objetos humanos: dinâmicas sociais no contexto de saúde português [Lecture: Biobanks and human bio-objects: social dynamics in the Portuguese health context] Biologia (Licenciatura) Universidade Lusófona de Humanidades e Tecnologias, Portugal
2019/05 - 2019/05 Aula: Biobancos em Portugal: Organização, constrangimentos e modos de ação [Lecture: Biobanks in Portugal: structure, hinders and practices] Gestão da Investigação Clínica (Mestrado) Universidade Nova de Lisboa, Portugal

Universidade de Aveiro, Portugal
2012/10 - 2013/07 Gestão e Organização dos Serviços e Cuidados de Saúde [Management and Organisation of Health Services and Healthcare] Técnico Auxiliar de Saúde (Ensino secundário) Seminfor - Escola Profissional de Penafirme, Portugal

Interview (tv / radio show)

Program Topic
2022 - 2022 90 Segundos de Ciência Biobancos em Portugal - Biobanks in Portugal

Journal scientific committee

Journal title (ISSN) Publisher
2018/06 - Current Humanities and Social Sciences Communications - Special collection: Making the cut? Scientific possibilities and ELSI challenges in genome-editing (2055-1045) Springer Nature
Distinctions

Award

2018 Prémio Científico
ISCTE-Instituto Universitário de Lisboa, Portugal

Other distinction

2019 Visiting Scholar
Fondation Brocher, Switzerland